Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nutritionist Needed


Mizzo

Recommended Posts

Mizzo Enthusiast

I live on Ri border and cannot drive into childrens hospital Boston for nutritionist appt's. Anyone use a nutritionist in the area they can recommend? From Providence to Marlboro, Ma area along rte 495 belt

I just had an appt with my Pedi offices new Nutritionist who didn't know what the hell she was doing. I left the appt with a standard healthy lifestyle form with a couple of things crossed off and bulger and spelt bread added. YUP !!! She said I will look a few things up for you for our next appt. Well I got home and looked up Spelt bread and bulger and am not going back of course. Maybe as a nutritionist she should have looked a few things up for me before she sent me home with really dangerous advice. I am writing the office to inform them of my decision to stop using her and why.

That being said I don't know who else to direct my nutritional questions too and am looking . My daughter is in the 98th percentile for wt and ht. with a ltd variety of vegetable eating so I need solid advice.

Please, only recommendations for those you have had good personal experience with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

No reco except advice to contact a local Celiac support group. They can usually reco someone.

Mizzo Enthusiast

No reco except advice to contact a local Celiac support group. They can usually reco someone.

Our local support group (small) is all adults , no families and they do not seek nutritionist help, unfortunately for me.

pricklypear1971 Community Regular

Perhaps another group, reasonably nearby knows of one you can ask for a referral?

I've noticed Celiac specialists seem to network...if you can find a Celiac nutritionist somewhat nearby that may be your best bet for a local referral.

frieze Community Regular

nutritionist is not a legally protected title in the US. Dietician is. good luck

Cara in Boston Enthusiast

Do you see the Nutritionist at Children's? My son (6) was diagnosed there so we see their nutritionist twice a year. I don't recall her name, but she seemed to know what she was talking about. We usually meet in a group setting with one or two other families. I also have celiac disease and see a WONDERFUL nutritionist at BIDMC. Her name is Melinda Dennis. She also has celiac disease and has authored some books on the subject and founded a local support group. Perhaps if you can get in contact with her she can recommend a pediatric nutritionist who can help you. Did you talk to your doctor at Children's? They should be able to help as well. We have been very pleased with our experience there. They didn't give up (like the doctors at Mass General) on my son after conflicting blood test results and eventually found that he did indeed have Celiac Disease.

Cara

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,808
    • Most Online (within 30 mins)
      7,748

    Mr House
    Newest Member
    Mr House
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.