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BearRJ

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BearRJ Newbie

The odd thing about this is I saw on the news I know this is going to sound horrible to most of us. It did to me when I first heard it. I'm just starting the journey to see if I have Celiac Disease. I saw a clip on the news the other night that the Gluten free diet is now the new Diet craze. Can you believe that. I'm thinking why any normal person espically one that's already healthy want to make that kind of a change. For those of us who are truly sick with celiac disease and probably a host of other illnesses is a matter of life and death. I know a bit dramatic. We don't have a choice. I guess that was the thing that bothered me the most. The people that go on the diet just because it's the new diet. When the rest of us have to go through all the testing and labs to find out our answers and sometimes we're left with more questions than answers. It kind of agrivated me when I saw it though. I wish more people would understand more about autoimmune diseases. I call it the silent killer. It kind of is when you think about it. All we can do is live one day to the next and hope that we have a good day. I never get up feeling the same way twice. I wish I did. I never get up having energy two days in a row. One day I might get up feeling good and the next day I feel lousy. Its all connected in the autoimmune world. I have read that if you have one autoimmune disease that really opens the door for others to appear. I have 3 autoimmune diseases and I'm only 37. It all started with Thyroid problems(hypo) and it's been a bumpy ride ever since to say the least.

anyway, I do wish everyone the best of luck. If we don't fight for our health and a good quality of life no one else is going to do that for us. By the way how long should I expect to wait for my lab results. I'm so anxious. I want to get this ball rollin. I go for a colonoscopy after the first of the year. I know what a way to start the new year, but it was the soonest I could get a 7:30a.m. appointment.

So out of curiousity how many autoimmune diseases do you have?

Hashimoto's Disease

Raynaud's Disease

ITP

Hypothyroidism


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    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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