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Hello

hackerman

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hackerman Newbie
hackerman
Posted

Hello all, I wanted to introduce myself. I am the mother of a 14 year Old with Celiac, Chron's and Primary Sclerosing Cholangitis. She was diagnosed within the past three years with all this. We have not always followed the rules when came to her having gluten but learned our lesson when she spent 10 days in the hospital for pain and found her TTG was 23. Now things have totally changed and yes it is overwhelming, but I got to give her an early Christmas present of her own toaster. lol Anyway this will be our first Christmas traveling and it should be interesting for all. I have frozen meals prepared for her just in case we go to someone's house and there is nothing for her to eat. I was reading through the posts and I thank all of you for being here.

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      - trents replied to Healthierbody2026's topic in Related Issues & Disorders
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      New at gluten sensitivity

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    • trents
      New at gluten sensitivity

      By trents · Posted

      But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      @trents my apologies my doctor has been saying that I’m pre-diabetic for years now sorry I didn’t include that information 
    • trents
      New at gluten sensitivity

      By trents · Posted

      @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      @trents first response: can you direct me to that particular section of this site for NCGS or and are there any groups I can join for people with NCGS? second response: I can’t really remember due to it was some or a few years back but I believe she did blood tests or work on me or I think she did a glucose test on me.
    • trents
      New at gluten sensitivity

      By trents · Posted

      There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com is divided into a number of separate forums, each devoted to a different topic or concern within the gluten intolerant/gluten sensitive population. Having said that, the main is on those with celiac disease (or their support systems) rather than those with NCGS because it has more serious long-term health implications. I see. Can you elaborate on how you were tested to arrive at this diagnosis?
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