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Hello


hackerman

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hackerman Newbie

Hello all, I wanted to introduce myself. I am the mother of a 14 year Old with Celiac, Chron's and Primary Sclerosing Cholangitis. She was diagnosed within the past three years with all this. We have not always followed the rules when came to her having gluten but learned our lesson when she spent 10 days in the hospital for pain and found her TTG was 23. Now things have totally changed and yes it is overwhelming, but I got to give her an early Christmas present of her own toaster. lol Anyway this will be our first Christmas traveling and it should be interesting for all. I have frozen meals prepared for her just in case we go to someone's house and there is nothing for her to eat. I was reading through the posts and I thank all of you for being here.


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      Totally agree, that is an excellent point. I tend to mention these vitamins and also ferritin, because in England (not sure about the rest of the UK) these are the tests generally offered routinely through our public health system.  It is unusual to be offered much more than that. I was low normal/deficient in all three, and found that when I supplemented them all I felt better.  That said, my private nutritionist put me onto a very expensive broad spectrum supplement pill which no doubt went some way to address other deficiencies, and I took it into my own hands to take a supplement which contained all the B vitamins., too.  Interestingly, when I checked the supplements with my own GP a little while later she was very worried about the large doses of one particular vitamin that the broad spectrum supplement contained, so I came off the lot - although my gastroenterologist still has me take vitamin D.
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    • Theresa2407
      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
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