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Hello

hackerman

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hackerman Newbie
hackerman
Posted

Hello all, I wanted to introduce myself. I am the mother of a 14 year Old with Celiac, Chron's and Primary Sclerosing Cholangitis. She was diagnosed within the past three years with all this. We have not always followed the rules when came to her having gluten but learned our lesson when she spent 10 days in the hospital for pain and found her TTG was 23. Now things have totally changed and yes it is overwhelming, but I got to give her an early Christmas present of her own toaster. lol Anyway this will be our first Christmas traveling and it should be interesting for all. I have frozen meals prepared for her just in case we go to someone's house and there is nothing for her to eat. I was reading through the posts and I thank all of you for being here.

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    • Scott Adams
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      By Scott Adams · Posted

      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
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    • Florence Lillian
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Florence Lillian · Posted

      Hi  Scott  Thank you for the feed-back. I fear I did not correctly state what I was 'attempting' to convey. So much for writing at 11:30 at night.  To be specific, I was concerned about Gluten Cross-Reactivity e.g. Cross- Reactivity between a-gliadin and non-gluten foods consumed on a GFDiet. The following comprises my reading so far on this subject:  (If you cannot find these let me know and I can send them to you via email.) "Good for You Gluten Free" article Titled "Understanding Gluten Cross- Reactivity & Gluten Cross- Reactive Food.  Their reference is "Food and Nutrition Science Vol 4#1 (2013).  Further, a scientific paper written by:  Aristo Vojdani & Aristo Tarash titled "Cross-Reactions between Gliadin and Different Food & Tissue Antigens". A very interesting paper.  As several of the non-gluten foods affect me, as I mentioned in my letter, I am wondering if it could be connected to this topic. I would be interested in your thoughts on this. The paper by the gentlemen listed above is particularly interesting.       All the best, Florence       
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