Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hormone Balancing


CR5442

Recommended Posts

YoloGx Rookie

Hey Bea, I'll take a good look at the things i'm sensitive to. You may be right, but it doesn't explain why I can tolerate the herbs so well.... Hmmm! Anyway, the good news is that Izzy seems to have turned a corner this evening (touch wood) and Hugo is now in bed hopefully to wake up later with no fever. Hugo seems to get things much worse than all of us. They are on pretty much gluten free - the occassional thing turns up when we go out that isn't, but I think my family are fairly happy to accept that I'm so much better without it, therefore it is likely that the children will be too!

We now have a houseful for New Years. What do you have planned?!

Hi Caroline,

I am glad to hear that your kids are starting to feel better!

So far I think I will have a quiet New Years this year. We had a big Thanksgiving and then spent Christmas with a friend. I am still recovering from this gall bladder thing so do not want to do anything big. We are also building a shed--so that may be what we will be focused on... assuming I am up to the task.

Ironically I tolerated most herbs well for years. It took a long time I think for the salicylates to really build up. I also was taking antidotes too all along of course (as it turns out in retrospect)--in the dandelion, oregon grape root and garlic. I never did favor the mints for that long at a stretch. It did not occur to me that when I did drink them a lot it made me sleep far less well...

What did me in I think was a long stretch wherein I took all kinds of strong herbs including chapparal to kill off an intractible infection probably (in retrospect) from a tick bite. The herbs helped but the fever and congestion kept coming back. I had it for 5 or 6 months! My AMA doctors at Kaiser would not help me. They said it was not bacterial. They did not check on microbial. Unfortunately I failed to mention the tick bite. I just did not realize its significance.

Finally I took two courses of antibiotics (from my dentist--I thought perhaps my difficulties were from an infected tooth perhaps--and he insisted on the antibiotics before he'd remove the tooth). The antibiotics did the trick--and actually were of the kind I likely needed for Rocky Mountain Spotted Fever (if that is indeed what I had). They just happend to be the one kind of antibiotic I can safely tolerate.

However soon after that I got the psoriasis and more severe nerve and thus sleep difficulties -- which is now alleviated by going off medium to high salicylates and taking frequent epsom salt baths plus MSM etc. as well as the dandelion, and alternating the oregon grape and barberry... All of which is making it so I can finally tolerate eating peeled golden delicious apples and peeled pears--necessary for my liver and gall bladder health.

Seems that the acupressure is helping big time too. The same also for my friend Graeme. He says his symptoms are 70% better today from my one exploratory acupressure treatment of him yesterday!

I think energy therapy of various kinds is a better way for some of us to go, though the herbs (if they are the proper ones) definitely help too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Hi Caroline,

Hope you and your kids had a wonderful, healthy New Year celebration with your gathering of friends and folks.

My boyfriend Chris and I actually went to a party yesterday--an art closing a friend of ours had as well as a New Years Day celebration. Chris played music with some other folks and I read poems afterward. I also did a line drawing I may use as a basis for a larger painting later on.

Mainly we had a quiet New Years weekend. I unfortunately got glutened cleaning out behind the seat of my work truck on Thursday. My truck had a flat tire and I was looking for the car jack. Afterwards we got started on the shed. Awful D on Friday and then later a migraine on Saturday! I am still recovering my energy today--as is Chris, nursing a slight sore throat. Chris's sore throat seems to be rapidly going away from eating chicken veggie soup with garlic and ginger and veggies--as well as dandelion, cleaver and nettle tea.

Meanwhile Chris has been investigating more about gluten and other intolerances (soy, milk, corn) in people and animals on the internet. Interesting stuff. Indicates this stuff really isn't that great for anyone, though fermentation can improve it greatly. We looked up about gluten intolerance and gall bladder and came up with all kinds of stuff, including information on the nervous system by way of the whole excito-toxin point of view.

Next I want him to look it up from the hormonal balancing point of view. I come at it from an herbal angle and he recalls his old classes in physiology. Pretty interesting stuff. If you'd like I'll post you some of the sites he came up with.

CR5442 Contributor

Hi Caroline,

Hope you and your kids had a wonderful, healthy New Year celebration with your gathering of friends and folks.

My boyfriend Chris and I actually went to a party yesterday--an art closing a friend of ours had as well as a New Years Day celebration. Chris played music with some other folks and I read poems afterward. I also did a line drawing I may use as a basis for a larger painting later on.

Mainly we had a quiet New Years weekend. I unfortunately got glutened cleaning out behind the seat of my work truck on Thursday. My truck had a flat tire and I was looking for the car jack. Afterwards we got started on the shed. Awful D on Friday and then later a migraine on Saturday! I am still recovering my energy today--as is Chris, nursing a slight sore throat. Chris's sore throat seems to be rapidly going away from eating chicken veggie soup with garlic and ginger and veggies--as well as dandelion, cleaver and nettle tea.

Meanwhile Chris has been investigating more about gluten and other intolerances (soy, milk, corn) in people and animals on the internet. Interesting stuff. Indicates this stuff really isn't that great for anyone, though fermentation can improve it greatly. We looked up about gluten intolerance and gall bladder and came up with all kinds of stuff, including information on the nervous system by way of the whole excito-toxin point of view.

Next I want him to look it up from the hormonal balancing point of view. I come at it from an herbal angle and he recalls his old classes in physiology. Pretty interesting stuff. If you'd like I'll post you some of the sites he came up with.

Hey Bea, so glad you had a good New Year, not great about the glutening though! Hope you are feeling better. We eventually had the family over... my stepmom, two of my brothers (there are five by marriage!), one girlfriend, and three neighbours. We had a hoot playing Operation... not sure if you have that in the US. It's a kids game but is quite funny after a few glasses of wine. My brother also made us eat 12 grapes along with the 12 strokes of big ben at midnight. So instead of hugging each other we were trying to stuff grapes in to our mouths. Hilarious!

Really interesting on the research. Yes, I would be very interested to get some links. The excito-toxin angle is particularly interesting. Anything that throws hormones out of balance has to be bad! I think I might go grab some nettle today too as I also have a sore throat - again.

My son Hugo has been really very poorly with flu. We all had it but Izzy and I seemed to recover quite quickly where Hugo has an awful gag reflex and had a poorly tummy too. So every time he coughs alot he throws up. It's definitely getting better but it has been a real worry. He is only two. But thankfully he has a good amount of padding (well, not now!). I used Garlic compresses on his feet for two days and some camomile homeopathic powder to help the fever and the coughing. Seems to help apart from when he is well in to a coughing fit! Obviously had to use some paracetamol and nurofen to make sure his fever didn't get higher than 39.5 degrees (that's about 102.2). Quite scary whilst the fever was here but now that has gone I know he is winning the battle. Now to get him stronger so that he can start moving around again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748

    Jane Margaret
    Newest Member
    Jane Margaret
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.