Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4yr Old Son Just Diagnosed With Cd


DylansMom

Recommended Posts

DylansMom Rookie

My son Dylan has just been diagnosed with this and we are just starting. He is 4 and I was just wanted any and all help/info from parents who have been through this and suggestions on handling it without becoming overwhelmed.

Thanks for your suggestions and I look forward to getting to know several of you on the boards.

Jennifer :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi Jennifer and welcome :)

There is tons of great information here, and really nice folks. I'm sure you are already, but read through a bunch of past threads (even if the topic isn't exactly for you - we often go off-topic on a thread, lol). And then just ask away, we'll answer what we can :)

Merika

ryebaby0 Enthusiast

Congratulations on a diagnosis! It will be overwhelming at the beginning -- there's just no way around it -- but keep a very positive attitude and try not to tackle too much at the start. It does become second nature and is very "do-able"

Our advice? Eat "whole" foods to start -- stuff that doesn't come shrink-wrapped or processed. Gives you time to learn labels and brands. Mainstream things he can eat? Oscar Meyer hot dogs. Stax chips (or just about any plain potato chip). Klondike bars, hershey bars and skittles. Milk. Sprite. Capri Sun. Polly-O Twistums. Jello. Popsicles. McDonald's hamburgers without the bun, and McD's fries. Watch out for? Malt flavoring (it's in cereals, among many other weird things you wouldn't imagine) and unlabelled/unknown ingredients.

Remember that even on this extremely helpful board, there are differences of opinion, schools of thought, and occasional errors. (We're not doctors, we just roll our eyes at them when we're leaving the office......)

Good luck! and welcome!

Joanna

mom/wife to celiacs dx. 12/03 and 12/04

Guest nini

my daughter was 3 when she was dx. She's 5 now and doing really well...

try not to panic. Stick with whole foods wherever possible, eventually you will learn to be comfortable reading labels

Jnkmnky Collaborator

Classico Alfredo sauces

Manwich sloppy joe sauce

Oscar Mayer hotdogs/bologna

Hormel salami

Post Fruity/Cocoa Pebbles

Bush's Baked Beans

Cozy Shack Rice Puddings

Lot's of Breyer's Ice Cream *check for Malt*

Old el Paso Taco Sauce for Tacos *the one in the JAR*

Taco shells

Boar's head Cold cuts *most*

Lays Stax potato chips

Corn chips

Cheetos

Snickers bars *NOT poppables*

Recess Pb cups

Hershey's kisses

Peppermint patties

Kinnikinnick products are great------>Open Original Shared Link

Chebe is veristile and easy----->Open Original Shared Link

Knowing what to feed your child is what makes this disease easier. Hope this helps.

Guest Lucy

Just wanted to wish you and your son the best. My son was diagnosed 8 months ago. He was 2.5 years old. He also has diabetes. His diet is VERY limited and it is doable. I can't really even complain anymore. We have adjusted wonderfully, but it was WAY overwhelming at first.

Ask any questions, someone will answer.

Tinkiyada spaghetti (rice) noodles and ragu sauce. It is a staple in our home.

Hot dogs, Hotdogs, and more hotdogs. (not real healthy, but real fast.)

Rice, Fruity and Cocoa Pebbles, Van's gluten free frozen waffles. We buy microwavable breakfasts too.

Yogurt (check labels). Fruit.

lbsteenwyk Explorer

Here is a thread that ran several months ago with lots of good menu ideas for kids:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.