Help With Test Results

[clover]

Hi!

Five years after being diagnosed with Celiac Disease, I finally got the follow-up tests to see how I am doing with the diet. Problem is, I had to go to my general physician and request the test, as I do not have health insurance. So, the only thing my general doctor can tell me is that I came back positive for Celiac Disease, which is not very helpful. What I want to know is if my results show that I am doing well on the diet. My results are:

Deamidated Gliadin Abs, IgA: 7 (units 0-19, negative 0-19, weak positive 20-30, moderate to strong positive >30 )

Deamidated Gliadin Abs, IgG: 45 High (units 0-19, negative 0-19, weak positive 20-30, moderate to strong positive >30 )

t-Transglutaminase (tTG) IgA: <2 (u/mL 0-3, negative 0-3, weak positive 4-10, positive >10)

t-Transglutaminase (tTG) IgG: <2 (u/mL 0-5, negative 0-5, weak positive 6-9, positive >9)

Endomysial Antibody IgA Negative

[These are LabCorp results]

I am most concerned about the Deamidated Gliadin test that came back "High". Can anyone help me read this?

THANKS FOR YOUR HELP!!!!!! xoxo

[mushroom]

Any celiac test which comes back high after five years on a gluten free diet is cause for concern, particularly the DGP which is pretty specific to celiac. It looks like there is gluten getting into your diet somehow.

[domesticactivist]

What were your original numbers? I agree with mushroom that high numbers could indicate you are still getting gluten, especially on the DGP which is specific to celiac. High tTG numbers with a totally gluten-free diet could indicate other autoimmune issues like Type 1 Diabetes, Hashimoto

[clover]

  On 12/28/2011 at 5:02 AM, domesticactivist said:

What were your original numbers? I agree with mushroom that high numbers could indicate you are still getting gluten, especially on the DGP which is specific to celiac. High tTG numbers with a totally gluten-free diet could indicate other autoimmune issues like Type 1 Diabetes, Hashimoto

[frieze]

  On 12/28/2011 at 1:02 PM, clover said:

Big thanks to you both for your responses.

I don't understand my original numbers at all. It does not appear to be the same kind of test. It appears I was given an ANTI-TPO IGG and my number was 730.5 which is flagged "A". The reference range is <20 IU/ml Negative, 20-29.9 IU/ml Equivocal, >-30 IU/ml Positive)

ANTI=TPO is a thyroid test, i think.

[domesticactivist]

Hm. Are you sure no other tests were run? Do you have a full copy of your chart? If not, now would be a good time to get one and look it over. Remember to ask for the archives, too. The copy fee is worth it! You can also call the labs that ran your tests and often they will have records of your tests from the last ten years or so.

[clover]

  On 12/28/2011 at 4:46 PM, domesticactivist said:

Hm. Are you sure no other tests were run? Do you have a full copy of your chart? If not, now would be a good time to get one and look it over. Remember to ask for the archives, too. The copy fee is worth it! You can also call the labs that ran your tests and often they will have records of your tests from the last ten years or so.

Ok. Obviously that is not the correct test. I have a copy of all of my health records from that time but I will have to look again...

TBC...

[nora-n]

There would not be an original DGP result, since this is a new test.

About the DGP IgG test:

This one is known to be a very good test to check on someone following a gluten free diet, since it will be high before the IgA version gets high.

We have had at lest one test result like this with the same circumstances here, someone who had been eating gluten free for a while.

So it just means you are getting tiny amounts of gluten.

I wish they would use it here where they eat gluten-free wheat starch, but they run the IgA version together with the total IgA test......

A note:

Someone blogged some years ago that her ttg IgG came back high after she was feeding wild birds once a week with bird feed. The dust alone was enough to cause those antibodies.