Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For My Results, My Story


tinab3girls

Recommended Posts

tinab3girls Rookie

My Story-

Didn't know if someone could read this and let me know what you think. For the past 2.5 yrs I have been dealing with stomach issues. They came on slowly and would be one episode every 3 months or so. The night before my daughter's 1st bday party my body fell apart. Within 6 months I lost 20 lbs and was unable to eat anything really. It took a year to figure out what was going on but was diagnosed with a Chronically Inflammed Gallbladder (no stones really no pain). It was removed 1.5 yrs ago. I thought everything would be great but lately I've had a whole new host of problems. Major one being I have not gained 1 ounce of weight back that I had lost. Normally wouldn't be a big deal except I am 5'4" and 105 lbs. I can finally eat food but get very bad heartburn, bloating/gas and occassional after I eat. I have diarhea in the morning and sometimes after breakfast. These symptoms are hard because all can be due to having no gallbladder. I am exhausted all the time. I am now dealing with cystic acne. I developed anxiety and panic attacks out of no where about a year ago. I have the shakes. I am starving all the time even after eating, my stomach literally acts like I haven't eaten in days. I am having vision problems where everything will go blurry and I have to force myself to refocus. Whew this sounds like sooo much! I just met with an endocrinologist because my mother was diagnosed with Graves Disease when she was 28 (I am 31) and he was the one to mention Celiac Disease. Does this sound familiar to anyone? I will be calling the Dr on Tuesday morning to go over my blood test results but in the mean time was wondering if anyone else experienced issues with their gallbladder as well??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

cystic acne, you mean HS, this is gluten related, and there are several threads about it on this forum.

(hidradenitis suppurativa)

Yes, several here have had huge gallbladder problems, even autoimmune liver disease is caused by gluten.

tinab3girls Rookie

Thank you so much for that info! I just went and looked into HS and was very surprised to see that it can happen in the nasal cavity and sinus tract. I have had issues with bumps and sore in my nose for quite some time that I just assumed were ingrown hairs. After reading some I didn't really see where anyone mentioned the 'boils' on their face? Mine at first were popping up on my chin line and now i have one on my left temple. So painful and swollen. They only last about 3-4 days but they don't become open sores. Could they still be HS? thank you for all your help!!

tinab3girls Rookie

I guess I should add that I was diagnosed with WPW syndrome when I was 18 and then developed AV Node reentry when I was 23. Had ablation surgery both times and so far I am free of any cardiac problems other than rapid resting heartrate at the moment. My endo doctor has put me on Beta Blockers for the time being until the test results come back.

nora-n Rookie

I am in no way a HS expert, but it can even be in the throat!

I do not remember if gluten is connected to WPW syndrome, though.

Heart involvement is possible, though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.