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What Doctors (Don't) Know


Duhlina

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Duhlina Apprentice

I have a friend who is a doctor. He is a primary care doctor - I'd guess he's about 55-60 years old, he's not a GI specialist or anything like that. I was joking with him yesterday that the dog is happy that the treats I gave him for Christmas have wheat in them so he doesn't have to share them with me. My friend read the bag and said "Oh, they are made with barley flour so you can have them" :huh: Seriously?? He is a DOCTOR and he has no clue about Celiac? NONE?! I was really shocked when I heard him say that. It just really hit home that most doctors really have no clue what Celiac is. <sigh>


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Ellie84 Apprentice

celiac disease is a relatively new disease, it was discovered shortly after the second world war. Before the nineties it was considered a rare disease and doctors didn't learn much about it. It has become more well-known since the nineties, so the knowledge about it is slowly increasing. It's still poor with most doctors though, so it can be useful to drop off a leaflet with information about celiac disease. The Dutch coeliac association offers these leaflets to patients to show to their doctors.

frieze Community Regular

celiac disease is a relatively new disease, it was discovered shortly after the second world war. Before the nineties it was considered a rare disease and doctors didn't learn much about it. It has become more well-known since the nineties, so the knowledge about it is slowly increasing. It's still poor with most doctors though, so it can be useful to drop off a leaflet with information about celiac disease. The Dutch coeliac association offers these leaflets to patients to show to their doctors.

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first identified in the 1' century AD.

Aly1 Contributor

Although celiac has been a known disease for quite a long time, it was considered a rare one until relatively recently. I think at this point in time patients have to read read read and educate themselves about the condition - we are not at the point where patients can just rely on their docs for guidance like they might with something like diabetes.

It's even worse if you are gluten intolerant and not celiac - it's only been a little over two years that the EXPERTS acknowledged that this condition is genuine...

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    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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