Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Me And Sister Feel Absolutely Terrible


Chalula88

Recommended Posts

Chalula88 Apprentice

Ordinarily, I don't eat any pre-packaged food that has any dyes, preservatives or more than 3 ingredients. The three days I posted are just the days without dairy where I had to find something else to eat and those were the things I had. That is not at all my typical diet.

I don't eat pre-packaged gluten free foods, except very occasionally bread and crackers. Otherwise, the only prepackaged foods I eat are taco shells and they only have three ingredients (corn, water, lime). I didn't think there was any risk with those things, but I will cut them out for a while just in case.

Also, me and my sister are both 5'3" and 105 pounds. The doctor decided today to put my sister on a formula so that she'll get more calories. We've both struggled to get enough calories, everything gluten-free seems to also be super low calorie and neither of us eats more than a serving of meat per week. Since we've both decided to go dairy free, I'm afraid we're both going to end up underweight.

Since I only drink water, I don't think dehydration is the problem. While I have not been tested for auto-immune disorders, my sister was tested and had no indicators at all and we have the same symptoms.

I'm not sure what to eat besides veggies and rice. I am interested in the paleo diet, but I really don't want to eat that much meat, but if it's what I have to do, it's what I'll do.

Thanks again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

You could try a semi macrobiotic diet. Of course it includes a lot of rice. Hopefully that won't be a problem. If it is, then the paleo diet may be for you. You can add in some squash and roots for the carbs instead of rice etc.

Still consider you might have candida overgrowth. Signs of it are excessive tiredness, making bad smells, a white tongue (though salicylate sensitivity can do this last one too), brain fog, craving sweets and/or carbs, a puffy belly, possible fungus on your toenails or crotch rot, vaginitis (though my bad puffy flaky skin there was actually psoriasis--which responds well to dandelion et al and going off salicylates). Anything else guys??

If you do think you might have it, when you go off enough carbs and sugary foods you will likely go through some unpleasant symptoms. If you don't experience the symptoms, its unlikely you have candida overgrowth.

When the candida is dying off it sends out chemicals that makes you crave sweets or at least very carby food and makes you feel mean and nasty. Its a good time to become a cave dweller and see as few people as possible. I got terrible headaches and burning eyes. Resist the urge to indulge. After 5 or 6 days you will have already gone through the hardest part. After that it gets easier.

Pao de arco is one of the good herbs to use to counteract a candida infection. So is garlic. Oregano oil capsules often are quite effective (as long again as you don't have a salicylate problem) as is olive leaf tea or capsules. There are many others, however these are fairly safe ones to start with.

frieze Community Regular

Obviously there are multiple factors going on here. I would suggest getting a 3-5 hour glucose tolerance test, and FASTING INSULIN testing. And adding small amounts of meat more frequemtly. good luck

Chalula88 Apprentice

I think my recent terrible symptoms are related to casein withdrawal. I'm starting to feel better again and my sister is doing great without milk. We're going to give that a while and keep food journals to try to catch anything else that comes up.

YoloGx Rookie

I think my recent terrible symptoms are related to casein withdrawal. I'm starting to feel better again and my sister is doing great without milk. We're going to give that a while and keep food journals to try to catch anything else that comes up.

I'm happy to hear you and your sister are starting to feel better being off the cheese etc. This is really great news!

At some point you might want to figure out whether or not it is the lactose or the casein or both. If it is just the lactose, you can have things like that plain home made 24 hour yogurt I mentioned. But this is for later on. For now just let your body heal.

It is also just possible that you will heal enough after six months to a year or so to be able to have plain milk again. I didn't, but many do. Milk molecules for some reason are some of the first to go through the leaky gut (i.e., the intestinal wall becomes more permeable) we get from the villi being impaired.

Work on healing the villi. Thus the bromelain/papain if nothing else--or its food equivalents: pineapple and papaya.

I would remain alert about the sugar and high carbs.

Good luck!

Bea

ciamarie Rookie

I think my recent terrible symptoms are related to casein withdrawal. I'm starting to feel better again and my sister is doing great without milk. We're going to give that a while and keep food journals to try to catch anything else that comes up.

Glad to hear it! And thanks for the update.

YoloGx Rookie

So how are you guys doing off the milk products now that its a few days later. A lot better I hope!

Bea


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    4. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.