Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Free And Struggling With Other Diseases


Andi P

Recommended Posts

Andi P Newbie

Hi there,

My name is Andrea and I am from Jasper Alberta Canada. I have been struggling with an autoimmune disease called dermatomyositis since 2004. I have hypothyroidism and fibromyalgia on top of that. I have not been 100% diagnosed with celiacs but have done a lot of research and tried many different medications and treatments that I am willing to try anything that might help me with my everyday pain and symptoms. I am 24 years old and have been struggling with my health since I was 17. I am sick of dealing with doctors that just try to push medications on me and would love to be able to put things into my hands. I understand that this diet and way of life will take a while before I could feel any benefits, but I am so willing to give it a try! So here I am ready to start this new lifestyle and would be very thankful for any tips that I could get for starting out. I'm looking forward to this next step of my life and am open to suggestions. If anyone has any questions about my other diseases please feel free to ask, I would love to be able to help someone else.

Thanks for your time


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Oh, ouch. So young.

Google is your friend for finding shopping sources for gluten free. Put gluten free name of thing you're looking for, such as - gluten free grocery Jasper Canada - in the search box to see what comes up.

Shop around the grocery store perimeter and go with whole, natural, unprocessed foods as much as possible.

dilettantesteph Collaborator

Be patient. It takes awhile to figure it all out. Eat lots of produce.

deltron80 Rookie

Welcome! I hope you feel better on a gluten-free diet! :)

AVR1962 Collaborator

I do believe you have found the right place. Hypothyroidism and fibromyalgia are all too familiar terms for me. If you are still on glutens I would suggest that you have the blood test for celiac and see if they can do a scope on you. I swear docs continue to throw tests at you left and right without a diagnosis.

If you have gone off, give it time, it takes awhile but be VERY strict. Look at all labels. I was surprised to find wheat in my cooking spray of all things!

You might be surprised how going off gluten could reverse some of what you are dealing with. My calcium with too high which they thought was due to a bad parathyroid gland, I had been having heart palpitations for years, had weird mole-like things coming up and then going away on my shoulder, even my blood pressure went high for awhile during the detox stage but all are gone now. I asked doc how my calcium level could have gone from too high to almost borderline low and he told me that maybe it was a mistake in the lab. Really? It was a result of going off gluten.

Are you having any muscle spasms, flinching, burning or numbing in hands of feet, vision issues, hair loss,pins and needles pokes, or extreme fatigue? Important issues to address. If your intestines have been damaged by gluten it is not uncommon for the body to start feeling the effects from the villa not absorbing nutrients properly and this is not going to go away immediately after going off gluten. It is a long, slow process but very well worth it. If you are having any of the above I would ask your doc for a blood test to check your B12, iron, magnesium, potassium, D, calcium and zinc levels. Don't just take their word for it either, request a copy of the labs and check it out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
    • knitty kitty
      I suffer from Dermatitis Herpetiformis, too.  Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up.  I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins.  (Meat and liver are great sources of B vitamins.)  Low levels of certain B vitamins ( B12, Thiamine, Pyridoxine, and Niacin) can affect the nerves, resulting in itching and tingling.  Niacin especially helps with the itching and healing the blisters.  Tallow Balm helps with the healing, too.  Zinc and Vitamin A also help with skin health.   I've gotten such good results with Niacin and the other vitamins mentioned that I've never had to go on Dapsone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.