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Iga Result (4)

DebbieM

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DebbieM Rookie
DebbieM
Posted

Can anyone here help me out...I found out my IgA was a 4 and normal is 0-3.

I am going for endoscopy (my 2nd one), but I am breastfeeding, so I am holding off a bit.

Any thoughts on this IgA result? My DR said it is a just slightly higher than normal so does that necessarily mean celiac?

Thanks,

Debbie

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Skylark Collaborator
Skylark
Posted

Sorry, but you need to tell us which kind of IgA. Some are more specific for celiac than others.

DebbieM Rookie
DebbieM
Posted
  • Author

Umm...I am not sure.

I am waiting to get a copy of everything so I have it in writing.

Over the phone the nurse just said "IgA TTG".

Thanks :)

Ginger7 Rookie
Ginger7
Posted

Can anyone here help me out...I found out my IgA was a 4 and normal is 0-3.

I am going for endoscopy (my 2nd one), but I am breastfeeding, so I am holding off a bit.

I recently have an endoscopy/colonoscopy while breastfeeding. My daughter was four months old at the time. Depending upon method of sedation, you can resume feeding following scope as soon as you feel alert and able. Just mentioning this in case you are delaying because of breastfeeding. Many people, including GIs are not well educated on breastfeeding and will tell you to pump and dump for 12-24 hours after scope. That is ultra conservative. You can research this and make your own decision. I thought it might be useful for you to know you are not alone and that I recently had a scope and I was and am breastfeeding.

Skylark Collaborator
Skylark
Posted

TTG is the type of IgA. :) Anti-TTG IgA is an autoimmune antibody to a protein in your body called tissue transglutaminase (TTG for short). It's most often an indication that you're celiac, though it can come up in rheumatoid arthritis and other inflammatory bowel diseases. It's hard to get a positive blood test, so you should take even a low positive very seriously. Can you get them to run the rest of the celiac panel right away? You should have another autoimmune test called anti-endomysial IgA, and anti-deamidated gliadin peptide IgG and IgA. If either of those are positive you are celaic for sure and wouldn't need the scope.

DebbieM Rookie
DebbieM
Posted
  • Author

Thank you.

That helps alot.

I have had different tests done by different drs.

I am gathering it all so I can take a look at what tests I have had and which I haven't.

It is confusing b/c I have had different doctors, been on and off gluten (which affected results), had 1 inconclusive biopsy and tested positive for both genes.

Thanks for replying. I appreciate it.

The journey continues....

Debbie

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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