Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

90 Percent Sure, Going To Gi Monday


addis001

Recommended Posts

addis001 Apprentice

My history-

Hyperthyroidism 2000-2004

(went through a period of not caring to take my PTU, not having insurance during 2003-2004)

Suddenly in 2005, some of my symptoms were gone and blood tests were normall..

Pain and gall stones found in 2006.

Gallbladder removed in 2008. (insurance finally kicked in)

Hyperthyroidism again in 2nd trimester of pregnancy up until birth March 2010

Symptoms since gallbladder removal-- Some nausea still, even before gallbladder Lactose (milk) intolerance

Since giving birth-- nausea, Tired, fatigue, bouts of diarrhea, weird pain under right rib area near abdomen, bloating

Symptoms since 4 months ago-- All above apply still, but bone pain, muscle weakness, depression type of not wanting to do anything, not hungry some days, some days I'm starving, weightloss , irregular periods

Been feeling better ever since I started taking my prenatals to try and get pregnant again. Fatigue disappeared, and depression lifted. I feel like getting out of bed and meeting the world again..

Family history-- Celiac Disease- Grandmother, Aunt, Cousin

As i look at all the facts staring at me, it seems like I'm armed and ready to go to the GI with all my symptoms.. But in my heart I know I have it no matter what this doctor wants to test me for.. All i want to do is cry.. If it isn't celiac, and my husband thinks I'm a hypochondriac, because he doesn't believe anything until its on paper.. Even though I pushed for the doctor to test my thyroid, and i pushed for the doctor to look at my gall bladder.. i found my diagnosis each time... And now I'm scared that this time I'm right.. I know there are probably a million things worse than being allergic to gluten, but right now I can't think of one thing. Maybe because its late, and I'm an emotional wreck anyway, but its just hard to take in.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Meggielynn13 Rookie

Reading this makes me feel like I'm reading a list of my own symptoms plus I might have hypothyroidism( minus the pregnancy ones as I have never been pregnant, I'm only 23 :) ) I too had my gallbladder out and had more problems after than I did before. Others have told me that having undiagnosed celiac or gluten sensitivity could have taken my gallbladder. Sounds like what happened to you too. I'm the opposite of you that I want the answers on paper so I know that I'm not being a hypochondriac. My boyfriend knows that I'm not and really does think I'm sick.

Hopefully you get the answers you need. And you do not sound like you are not sick. And reading this makes me feel better about my own situation cause I feel like I'm not the only one going through this. Let everyone know your answers when you get them back. Its great to read that people got the answers that they wanted. I hope to be in that place someday :)

addis001 Apprentice

Everyone I talk to that had no gallbladder, has had the worse problems battling stomach virus's too.

I had mine removed due to stones. Why was yours removed if you don't mind me asking?

***Update*** Had to go to the ER today.. I've had two days of constant diarrhea, which made me dehydrated.. They gave me an IV and (Zofloft?spelling?) For nausea and the cramping... I really really can't wait until i see the GI now.. It seems all I am is getting worse as time passes...

Meggielynn13 Rookie

I had the stomach virus two days before I had my gallbladder removed and a week after. I normally don't get it so I was wondering why I got it twice in about two weeks. I had my gallbladder removed due to pain in my side constantly and having tons of GI problems that the GI told me was due to IBS. I kept pressuring them to do a hida test cause there were no stones on the ultrasound and I'm glad they did it. It had a 12 to 14 ejection rate. At my age it should have been 90. But having it out I can barely eat anything without having issues 30 to an hour later. Hopefully they test you for celiac. If they don't I'd pressure them to. I did and they're testing me in two weeks. Going gluten free anyways cause of the 20-30% false negative. Let us know how everything works out. Being on here and reading/talking to people has helped me a lot so I don't have to talk about it constantly with family and friends who are sick of hearing it.

researchmomma Contributor

Everyone I talk to that had no gallbladder, has had the worse problems battling stomach virus's too.

I had mine removed due to stones. Why was yours removed if you don't mind me asking?

***Update*** Had to go to the ER today.. I've had two days of constant diarrhea, which made me dehydrated.. They gave me an IV and (Zofloft?spelling?) For nausea and the cramping... I really really can't wait until i see the GI now.. It seems all I am is getting worse as time passes...

Zofran is what they gave you for nausea and vomiting. I had IVs full of it during my pregnancies. It is fab.

addis001 Apprentice

YES Zofran!! It saved my life... Its like a miracle drug...

After seeing the GI, he wants to do colonosopy (spelling). he thinks its Crohns, IBS, or ulcer.. At least we're doing something..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,557
    • Most Online (within 30 mins)
      7,748

    Ortega
    Newest Member
    Ortega
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.