Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Start Trying Soon!

abaker521

By abaker521
in Related Issues & Disorders

Recommended Posts

abaker521 Rookie
abaker521
Posted

Hi Everyone. I'm so happy I found this forum! :)

I'm 27 and have been married to my husband for 8 months (we've been together for 5 years though). I was diagnosed with Celiac 4 months after our wedding (in September). I'm so happy I finally discovered why I was withering away and always in the bathroom... but I'm definitely still recovering. I stopped taking birth control back in July and finally got my period in September (first 'real' one since going off birth control, and exactly two weeks after going gluten free). My husband and I really want to start trying in the next few months to have a baby, but I'm still terrified that I'm not completely healed. My OBGYN said everything looks good with my reproductive organs, but I want to make sure my vitamin levels and antibody levels are in check. I'm seeing my primary doctor next week (although he specializes in GI he knows little about celiac unfortunately). I think I've been getting CC'ed a lot lately so I'm a little discouraged about that. I actually just read in a previous forum the prenatal vitamins I've been taking (Rainbow Light Prenatal One) contain trace amounts of gluten, although labeled 'gluten-free'! Maybe that's why I've still been getting sick? Crazy. Anyways, I just wanted to reach out and see if anyone had any tips to prepare my body for a (potential) pregnancy. Vitamins you recommend? Best foods to eat? Tips for fertility? I'm open to anything! :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


grayangel Newbie
grayangel
Posted

Congratulations on your marriage and your diagnosis!

As far as CC goes, keep reading, especially this forum! I think it takes a few months to get everything lined out. Make sure you've replaced your cutting boards, rolling pins, toaster, etc. and that your kitchen has been cleaned with respect to places flour may have settled over the years. Consider everything guilty until proven innocent with respect to gluten content. I would say to only use products you're sure of, especially when pregnant or trying to become so, and don't forget about skin care products (shampoos, lotions, makeup, etc.) If it is on your skin, it can get into your mouth. Also, don't lick envelopes! :-)

Keep in mind that you might have another sensitivity. I had to eliminate dairy also. Many others have had to give up soy and/or other foods. Keeping a journal of everything you eat/drink might help you pinpoint something.

I take New Chapter vitamins (Perfect Prenatal, Wholemega Prenatal, and Bone Strength) and Nature Made vitamin D3. These are all gluten free, but they DO contain soy.

Good luck and keep us posted!

psawyer Proficient
psawyer
Posted

Also, don't lick envelopes!

While there are lots of things to worry about, the envelope story is a celiac urban myth. In all the time I've been a celiac, nobody has ever found an envelope with gluten in it.

grayangel Newbie
grayangel
Posted

While there are lots of things to worry about, the envelope story is a celiac urban myth. In all the time I've been a celiac, nobody has ever found an envelope with gluten in it.

Wow, thanks, Peter! We can always use one less thing to worry about! :)

abaker521 Rookie
abaker521
Posted
  • Author

Thanks for the tips! This week has been rough (either CC'ed or developing other food sensitivities).. so I definitely think we need to wait until I can get it under control. Wanting a baby is pretty good motivation though to be extra careful and take good care of yourself! I'm going back to the basics and slowly incorporating different foods/products back in to see what the issue is. I will keep everyone posted. =)

upwitht21 Rookie
upwitht21
Posted

You and I are in the same boat =) we are going to start trying...again in a couple months. Been gluten free since November and for the first time in 3 years I ovulated this months without meds so so far so good.

Good luck!!!!

abaker521 Rookie
abaker521
Posted
  • Author

That's great upwith! Keep me posted! I think we're going to start trying around May, depending on if I can get my body healthy again. Fingers crossed. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


upwitht21 Rookie
upwitht21
Posted

We didn't prevent this month lol but will be trying another cycle of fertility meds in march? My endocrinologist still insists I have pcos and that celiacs is not the problem. I think he's miss informed but I'm fine doing the meds since they cant really hurt and if it improves our chance more than yay.

Fingers crossed and baby dust to you!

jswog Contributor
jswog
Posted

I actually just read in a previous forum the prenatal vitamins I've been taking (Rainbow Light Prenatal One) contain trace amounts of gluten, although labeled 'gluten-free'! Maybe that's why I've still been getting sick? Crazy. Anyways, I just wanted to reach out and see if anyone had any tips to prepare my body for a (potential) pregnancy. Vitamins you recommend? Best foods to eat? Tips for fertility? I'm open to anything! :P

Where did you read that? Many of the women on here have/are taking the Rainbow Light successfully. I am fairly sensetive and have been taking them without any gluten reaction.

As for tips, just eat a healthy, well-rounded, gluten-free diet. Make your house gluten free as well. Chuck all potential CC out of your life. I went gluten free back in Sept. My husband and I made a nearly gluten free kitchen and I have been FANATIC about even the most minute crumbs (just ask him--I can drive him crazy with it at times). I was SO sick and NEVER want to go back to that! I had been off of bc for four months at that time, with still not having a period. One month gluten free, my period returned (coincedence, I think not!). My doctor warned me that I still would likely not be ovulating, but encouraged me to get some OTC OPK just so that we would have a fuller picture of not ovulating in order to move forward with (potential) fertility treatments and gave us six months TOPS to be pregnant before she wanted to pursue further avenues (I'm 35 and my husband is 40). Well, lo and behold, I WAS ovulating on that first cycle! Imagine my surprise when I saw that :) on my OPK one not-so-random morning (right on track for 'normal' time frame, when I was NEVER regular before). Second cycle I was pregnant and am now 10 weeks along as of today. And everyone keeps being shocked at how early the tadpole keeps hitting milestones. When we had our first ultrasound at 5 1/2 weeks, the U/S tech warned us not to get worried as it was likely way too early to really see much of anything. Well, we actually SAW the heartbeat that day. And at my second prenatal appointment this past week, as we were wrapping up, my doctor said, "We'll bring you back in two weeks to hear the heartbeat for the first time." To which my husband laughed and replied, "She's been doing that for weeks now at home." He had gotten me a home dopplar for Christmas and I'd been listening to the baby's heartbeat since seven weeks (almost unheard of to hear it that early). So the doctor pulled out her dopplar from her pocket and, to her surprise, immediately found a very strong heartbeat.

Anyway, good luck when you start trying! Just maintain a good gluten-free diet and you should be fine!

abaker521 Rookie
abaker521
Posted
  • Author

That's great new jswog!! I too find it remarkable that my period returned after just two weeks of going gluten free. It's still a bit wacky though (about 37 days apart).. but hopefully I'll get more regular soon. I think I just need to put on a few more pounds perhaps.

I have become slightly fanatical as well about gluten. Two weeks ago I officially banned it completely from the house. I also cut out dairy and my morning coffee. I have definitely noticed a difference!

Regarding the Rainbow Light vitamins, it was posted by someone else in this forum. I have no concrete facts to back that up. I just bought some New Chapter Perfect Prenatal vitamins today so I'm crossing my fingers those sit well with me. B)

Congrats again & thanks for the tips!!

  • 1 month later...
EmmaCo Newbie
EmmaCo
Posted

Hi all. Beware - Rainbow Light Complete Prenatal vitamins are NOT totally gluten free. After being on the vitamins for only 4 days I began to react. I called them to ask if anyone else has complained to find out that there is gluten in them. The woman stated they are within the limits set by the FDA that allows up to 20 ppm. Therefore, they aren't wrong for labeling gluten free.

What a disappointment.

  • 7 months later...
Alys Rookie
Alys
Posted

I have had no issues with the Natures Bounty Prenatal tablets. They are labeled as having no: artificial flavor, preservatives, sugar, milk, lactose, soy, gluten, wheat, yeast, shellfish and sodium free. Not pregnant yet, but trying.

I also agree with others that say to throw away your non food items for gluten. I ended up having to throw out all my makeup and start over. Even my favorite Burt's beeswax Chapstick isn't safe. Same thing with my soap and shampoo. Who would have thought (vital wheat gluten) was a hair care product.

Dove soap, carmex have been good replacements for me. No sense in possibly compromising your kiddo.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,208
    • Most Online (within 30 mins)
      7,748
    Emily H
    Newest Member
    Emily H
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      There is dextrose in table salt?
    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      Medicinal mushrooms 🍄

      By Liquid lunch · Posted

      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Endoscopy

      By Scott Adams · Posted

      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Biopsy results after 1,5 gfd

      By Scott Adams · Posted

      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...