Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confusing Test Results

suziq0805

Recommended Posts

suziq0805 Enthusiast
suziq0805
Posted

I was diagnosed with gluten sensitivity by a GI doctor and then sent to rheumatology for follow-up. The rheumatologist said that my GI doc overdiagnoses gluten sensitivity. GI said I had red intestines when I went in for a biopsy, but there was not an infection (my GI was unable to do the procedure so another doctor did). I just got a copy of the lab results from the hospital, but can't understand a darn thing! I guess I should have requested the English version :) Does anyone have any idea what this actually means?

The following was on the pathology report:

"Prominent Brunner's glands are present in the lamina propria and submucosa focally associated with sparse chronic inflammatory cells."

"Multiple step sections show binign fragments of antral-type mucosa with an intact surface epithelium and mild chronic inflammation of the superficial lamina propria."

It also says the biopsies were pink-tan....so I'm not sure where my doctor said I had red intestines.

This was on the final diagnosis from the pathology report:

"Stomach, Antral Biopsy- mild chronic inactive gastritis, negative for Helicobacter Pylori"

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Your path report shows mild, chronic inflammation of your stomach just below the top layer of cells, which is intact. Bunner's glands are in the first part of the duodenum, so they might be from a second biopsy. The "sparse chronic inflammatory cells" shouldn't be there, so your small intestine is slightly inflamed too.

I don't see how your GI could diagnose gluten intolerance from that, since a lot of things besides gluten can inflame your stomach and there aren't any celiac-like features mentioned on the duodenal biopsy.

Do you feel better off gluten? If the inflammation goes away it's a good sign that the GI was right.

suziq0805 Enthusiast
suziq0805
Posted
  • Author

Your path report shows mild, chronic inflammation of your stomach just below the top layer of cells, which is intact. Bunner's glands are in the first part of the duodenum, so they might be from a second biopsy. The "sparse chronic inflammatory cells" shouldn't be there, so your small intestine is slightly inflamed too.

I don't see how your GI could diagnose gluten intolerance from that, since a lot of things besides gluten can inflame your stomach and there aren't any celiac-like features mentioned on the duodenal biopsy.

Do you feel better off gluten? If the inflammation goes away it's a good sign that the GI was right.

Not sure if I feel better off gluten or not. My issues are muscular and neurological and have times where they "flare up" and other times where they're not too bad. I've been gluten-free for 2 months and think I need to give it longer to be able to say if my muscle pain/weakness and nerve pain is better. I have noticed I have less headaches now than at the end of my 3 month gluten challenge. Still have some...maybe 1-2 headaches a month where if I stand up I get this throbbing pain behind my eyes, but not as many as before. My gums may not be as inflammed the last couple weeks. Previously it's been so painful to floss that I've basically avoided it....awful I know and I fully realize the importance of good dental health, but when I would floss my teeth would hurt ALL day and it would be painful to eat. When I went gluten-free I notice some acne I've had on my face began to clear up- still some scars there, but it's definately better than before (when I was on my gluten challenge I thought the acne got worse too). My stools are also a bit different- I never had diarrhea but no more floating stools now that I'm gluten free...whether that's due to no gluten or possibly not enough fiber who knows.

My 21 month old is gluten-free due to reactions when we introduced solid foods and recently put him soy and lactose free also and his daipers have made a huge improvement. So we're beginning to wonder if he ever had gluten issues or if the intense vomitting was due to soy (which we discovered was in many of the foods he reacted to, but not all). We're going to reintroduce one at a time and if we discover he's soy intolerant I wonder if I could be as well.

Skylark Collaborator
Skylark
Posted

I'm sure folks with neuro issues will chime in. My understanding is that it takes a few months of really strict gluten-free to get much improvement. It took me a long time and a lot of supplements to recover from the gluten-caused bipolar. Floating stools can be fat malabsorption.

Soy can be a big problem food, as can dairy or corn. Good luck figuring it all out!

suziq0805 Enthusiast
suziq0805
Posted
  • Author

So when I googled inflammed intestine I got some links to Chron's disease. Hmmm....is it possible? I don't have diarrhea, but did often get bad stomach aches as a teen- don't remember how frequent since that was awhile ago but I just wanted to curl up when I got them. Seemed like they may have been more frequent after eating food that was greasy, had dairy or soda. But since I wasn't too concerned about it I never kept a food journal to really test that out.

Skylark Collaborator
Skylark
Posted

I don't know much about Crohn's. It's not very common and the few folks who have posted here had bad diarrhea and a lot of pain. Your GI should have ruled it out if he's any good.

suziq0805 Enthusiast
suziq0805
Posted
  • Author

Thinking back the past couple weeks I did get more headaches when I ate soy I think. Maybe I'll try taking soy out too for awhile and see what happens.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.