Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Feeling Hopeless


Bubba's Mom

Recommended Posts

Aly1 Contributor

I eat Aldi's version of brown minute rice about once a week. I eat Koala Crisp cereal every day though. It's made from Organic brown rice flour.

I swear..no food is safe to eat! :o

You're doing better than me, I eat it 1-2 times a day 6-7 days a week!! And we thought brown rice was healthier. Whatever. If I cut one more thing out of my diet, I swear I will disappear.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 82
  • Created
  • Last Reply
pain*in*my*gut Apprentice

I eat Aldi's version of brown minute rice about once a week. I eat Koala Crisp cereal every day though. It's made from Organic brown rice flour.

I swear..no food is safe to eat! :o

OMG! Have you looked into the possibility that this could be arsenic exposure? :o Here is a link....

Open Original Shared Link

Bubba's Mom Enthusiast

I only just recently started to eat the Rice cereal due to losing so much weight, so I don't think that's my problem? The article also doesn't mention villous damage which I have a lot of.

I was eating more of the instant brown rice at first, but got kind of burned out on it. Lately I've been eating more potatoes. I'm not gonna look up what they do to make them not sprout. :blink:

I guess the possibility of arsenic building up in our systems is something we're going to have to consider? I won't be looking for any Louisianna rice!

squirmingitch Veteran

Course, we could all just get IV's & walk around with our little bag of clear liquid feeding into our veins. Hey, then we wouldn't have to worry about where it was safe to eat!laugh.gif

And I'm not going to tell you about the potatoes either. I eat a whole lot of them myself.

hd92392 Newbie

I understand your dilemma,It's bad enough when doctors don't know but worse when they pretend to be all knowing and look at you as if you are a drug seeking hypochondriac. I too felt like you. it took 15yrs to get diagnosed properly. through this process I have learned a lot about myself and my body. I learned that I don't fit the cookie cutter criteria that makes diagnosis more complicated. I learned that even though my labs are normal to the medical field they are abnormal for me. I can now tell when my hemoglobin is low, by how much ice i eat. I know when I have graves disease symptoms because I throw PVC's. I know when I am in Hashimotos, because I get so depressed it is as if I fell off a cliff into a deep hole. Thank God that only happened once!. I had to fight for an iron transfusion, so that I could function and work! I had to fight for more exams that would dig deeper to enable them to find the Graves and Hashimotos Disease btw it is rare that people have both. I had to fight to have my nutritional levels checked and had to tell doctors that I don't have to be a stick to be malnutrioned! bottom line, I had to fight and I am still fighting most importantly though, I am worth it! So are you keep fighting for yourself, autoimmune messes with alot of symptoms so no you aren't crazy they are just ignorant to the unknown specialty of autoimmune related disorders hugs feel better don't give up!

Bubba's Mom Enthusiast

I understand your dilemma,It's bad enough when doctors don't know but worse when they pretend to be all knowing and look at you as if you are a drug seeking hypochondriac. I too felt like you. it took 15yrs to get diagnosed properly. through this process I have learned a lot about myself and my body. I learned that I don't fit the cookie cutter criteria that makes diagnosis more complicated. I learned that even though my labs are normal to the medical field they are abnormal for me. I can now tell when my hemoglobin is low, by how much ice i eat. I know when I have graves disease symptoms because I throw PVC's. I know when I am in Hashimotos, because I get so depressed it is as if I fell off a cliff into a deep hole. Thank God that only happened once!. I had to fight for an iron transfusion, so that I could function and work! I had to fight for more exams that would dig deeper to enable them to find the Graves and Hashimotos Disease btw it is rare that people have both. I had to fight to have my nutritional levels checked and had to tell doctors that I don't have to be a stick to be malnutrioned! bottom line, I had to fight and I am still fighting most importantly though, I am worth it! So are you keep fighting for yourself, autoimmune messes with alot of symptoms so no you aren't crazy they are just ignorant to the unknown specialty of autoimmune related disorders hugs feel better don't give up!

It seems like getting the proper tests run..is like pulling teeth? I've been told many of my symptoms are A-typical.

The Dr. I saw at JAX Mayo called me and said the stool test I requested showed I had a parasite. It's one that often accompanies other things, and isn't something they usually treat. In my case, she said I was in such bad shape she thought it wise to treat it.

I've asked over and over to be etsted for SIBO, yeast, and parasites. They're on the list of things that cause villi flattening. It's ridiculous that I keep suffering and they don't test for these common offenders. It's really frustrating!

Bubba's Mom Enthusiast

You're doing better than me, I eat it 1-2 times a day 6-7 days a week!! And we thought brown rice was healthier. Whatever. If I cut one more thing out of my diet, I swear I will disappear.

Ok..we're not going to give up on the rice completely..maybe check the source..or cutback? We need to have something to eat!

Arsenic used to be used to treat for pinworms. If we need a positive to hang onto..the rice is protecting us from pinworms? LOL :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

That's the spirit! Yeh, the rice is protecting us from pinworms.biggrin.gifbiggrin.gifbiggrin.gif

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,637
    • Most Online (within 30 mins)
      7,748

    Sarahaaa
    Newest Member
    Sarahaaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.