Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get Worse At 5 Mo. Gluten Free?


saintmaybe

Recommended Posts

saintmaybe Collaborator

I've been five months gluten free, and it was all going really well. Adjusting to the diet, getting healthier, getting my energy back.

All of a sudden, I've developed two new food sensitivities in two weeks. Corn, which is confirmed, makes me as sick as if I've gotten a huge dose of gluten. Soy, which I haven't completely nailed down yet, seems to be a new one, because I was eating stuff with soy last week. Now this week, I feel like I've been hit by a truck, and those are the only things I can isolate as repeatable causes.

I know it's normal to develop more sensitivities as time goes on, and I know it's normal to get more sensitive to gluten itself. My question is around what time in your recovery did your extra food intolerances start showing up?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aly1 Contributor

For me it was at about the 3 month mark...I'm at 4 months and still in the middle of dealing with it... :0P

UKGail Rookie

I noticed worsening sensitivity after 3 months too. For me, I think it is mainly increased sensitivity rather than anything else (I am still dairy and oat free), but I am not ruling out other issues. Have gone back to diet basics to try to sort it out.

abaker521 Rookie

Wow.. it's 5 months exactly for me as well and I'm right where you are! I was doing well.. then all the sudden felt like I relapsed. I just started cutting out dairy so we'll see how that goes, but I'm so frustrated (actually scared more than anything). I read that some people have salicylate intolerance which absolutely terrifies me since that includes all my favorite foods. I'm seeing my primary doctor tomorrow so I guess we'll see what he says. I'm trying to eat as plain as possible (although I have yet to give up my morning coffee.. which I buy organic and grind at home). Today I just had some dry rice chex mix and a green smoothie (made with organic spinach, fresh blueberries, assorted frozen fruit and organic almond butter). We'll see how I feel later! My biggest issue is just terrible bloating, gas, and of course the 'big D'.. I've also heard SIBO could be a culprit. :(

pricklypear1971 Community Regular

I was great til 5 1/2 months.

I honestly think I was glutened, though - one big one. Then several small ones (eating out).

I did discover taking Claritin (half dose) helped get rid of some symptoms I was unsure were gluten or allergies. My allergies had been great gluten-free, though, til that point. I wonder if getting glutened triggered them?

I wonder if at around 5 months we start getting comfortable and adding in more potential cc or allergens? I know I did. I got braver (and dumber, apparently).

I also discovered my hubby's snoring is interfering with my sleep (he's on an out of town trip and guess what - im sleeping and my body feels sooo much better).

UKGail Rookie

Prickly, I think you are sadly probably right about getting complacent (or dumb). I started enjoying myself eating more gluten free baked goods and started slowly going downhill again. Then I got dumb and went to the bagel shop to get a toasted bagel for my daughter. Waiting in the bagel shop for 5 minutes got me good. I was ill for days, not well for a further week, and my digestion still hasn't got back to where it had been before I got adventurous. Dumb is very a good word for it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.