Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Have Some Answers...now I Have Even More Questions


jcronan

Recommended Posts

jcronan Rookie

After waiting for what seemed like eternity, I finally heard back from my doctor. She said I tested positive for Celiacs (amongst other things). So while I am relieved to finally know what I am dealing with... and quite frankly happy to know it was not all just in my head, I am quite anxious to know what lies ahead. I have already started a gluten free diet (only 5 days ago) so I know I am on the right track, but I just am overwhelmed. I even had a dream about a wheat field the other night (I wish I was joking about that). Does anyone have any advice for how to deal with the anxiety that comes along with the diagnosis?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

jcronan Rookie

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

lc1333 Apprentice

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

I feel your pain, I went gluten-free about 5 days ago now, and the other night I had a dream I was running down the hallway eating a Butterfinger, trying to not get caught!!!

Bubba's Mom Enthusiast

It IS a bit overwhelming at first! I think you are off to a good start? Going through your pantry, condiments, and spices and getting rid of anything with gluten is a great idea. Then they won't be there to grab accidentally.

I think a LOT of us are anxious about gluten and trace gluten? Many of us go through a sort of withdrawl at first too? It's a big change in our lives to suddenly find out it's dangerous to us, and it's everywhere around us!

It helps us keep "on our toes" though, right?

Also, if you are low on some vitamins/minerals it can give you anxiety as a symptom. I hope your Dr. ran blood panels to check these for you? If not, request them.

If your anxiety gets worse and interferes with your ability to do the things you want to do, tell your Dr. It might be helpful to have some medication to settle it down?

There are a lot of posts here about how to get your kitchen free from gluten, so read what you find. If you have any questions..just ask! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.