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Finally Have Some Answers...now I Have Even More Questions

jcronan

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jcronan Rookie
jcronan
Posted

After waiting for what seemed like eternity, I finally heard back from my doctor. She said I tested positive for Celiacs (amongst other things). So while I am relieved to finally know what I am dealing with... and quite frankly happy to know it was not all just in my head, I am quite anxious to know what lies ahead. I have already started a gluten free diet (only 5 days ago) so I know I am on the right track, but I just am overwhelmed. I even had a dream about a wheat field the other night (I wish I was joking about that). Does anyone have any advice for how to deal with the anxiety that comes along with the diagnosis?

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ravenwoodglass Mentor
ravenwoodglass
Posted

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

jcronan Rookie
jcronan
Posted
  • Author

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

lc1333 Apprentice
lc1333
Posted

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

I feel your pain, I went gluten-free about 5 days ago now, and the other night I had a dream I was running down the hallway eating a Butterfinger, trying to not get caught!!!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

It IS a bit overwhelming at first! I think you are off to a good start? Going through your pantry, condiments, and spices and getting rid of anything with gluten is a great idea. Then they won't be there to grab accidentally.

I think a LOT of us are anxious about gluten and trace gluten? Many of us go through a sort of withdrawl at first too? It's a big change in our lives to suddenly find out it's dangerous to us, and it's everywhere around us!

It helps us keep "on our toes" though, right?

Also, if you are low on some vitamins/minerals it can give you anxiety as a symptom. I hope your Dr. ran blood panels to check these for you? If not, request them.

If your anxiety gets worse and interferes with your ability to do the things you want to do, tell your Dr. It might be helpful to have some medication to settle it down?

There are a lot of posts here about how to get your kitchen free from gluten, so read what you find. If you have any questions..just ask! :D

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    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

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    • cristiana
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      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
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      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
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      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
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      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
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