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Poll: Celiac's Linked To...

hexon

By hexon
in Coping with Celiac Disease

  

16 members have voted

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hexon Rookie
hexon
Posted

I'm starting this poll because my curiosity was sparked by another thread. Like many of you I have gluten intolerance. Unfortunately I don't know if this is related to Celiac's disease because because I refuse to endure the gluten challenge to be tested further. Along my journey to adulthood I've experienced appendicitis and multiple kidney stones (beginning from age 8). I was also diagnosed with C. diff which was cured with Flagyl treatment a few years ago. However, with the C. diff the doctor was very curious as to how I developed it without prior antibiotic use, which is generally the causative agent for C. diff infections. I've read a few research papers from PubMed on the relationship between a few of these, but didn't find much solid data. So the scientific mind that I am just wanted to see if any of the rest of you have experience the following problems.

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burdee Enthusiast
burdee
Posted

I'm starting this poll because my curiosity was sparked by another thread. Like many of you I have gluten intolerance. Unfortunately I don't know if this is related to Celiac's disease because because I refuse to endure the gluten challenge to be tested further. Along my journey to adulthood I've experienced appendicitis and multiple kidney stones (beginning from age 8). I was also diagnosed with C. diff which was cured with Flagyl treatment a few years ago. However, with the C. diff the doctor was very curious as to how I developed it without prior antibiotic use, which is generally the causative agent for C. diff infections. I've read a few research papers from PubMed on the relationship between a few of these, but didn't find much solid data. So the scientific mind that I am just wanted to see if any of the rest of you have experience the following problems.

I had c-diff after taking antiparasitic drug alinia for cryptosporidia and antibiotic herbal supplement caprylic acid for klebsiella and later enterobacter cloacae over a 3 year period. So my good bacteria were very depleted despite taking a high dose probiotic after each treatment. My doc intially treated my c-diff with flagyl, but c-diff recurred, probably because I'd had c-diff for several months before my doc agreed to test me (with stool test). So I had more than a 'mild' c-diff infection, which flagyl usually kills off. Even on vancomycin I continued to have c-diff recurrences after treatment ended until I found through online research a tapered/pulse dose treatment study. I tried that approach with vanco and eliminated my c-diff spores. I've had 3 'clean' (no c-diff) stool test results since I used the tapered/pulse dose approach.

AVR1962 Collaborator
AVR1962
Posted

I have had kidney stone issues for 26 years now. I was told by doc that there is nothing a person can do for the type of stone I have, he said when he sees this is is inherited. I have 2 8mm stones lodged high in my left kidney in a dry pocket where liquids do not pass so even if they were to break them up, they would not flush out. They are in a difficult spot to extract so doc has recommended they be left and have been there for over 20 years. I have to stay hydrated and someones for what seems no reason, I will get these waves of pain which make me sick to my stomach...no infection and no stones passing, kidneys themselves are helthy so the only thing I can conclude is there is something with the lodged stones.

hexon Rookie
hexon
Posted
  • Author

I have had kidney stone issues for 26 years now. I was told by doc that there is nothing a person can do for the type of stone I have, he said when he sees this is is inherited. I have 2 8mm stones lodged high in my left kidney in a dry pocket where liquids do not pass so even if they were to break them up, they would not flush out. They are in a difficult spot to extract so doc has recommended they be left and have been there for over 20 years. I have to stay hydrated and someones for what seems no reason, I will get these waves of pain which make me sick to my stomach...no infection and no stones passing, kidneys themselves are helthy so the only thing I can conclude is there is something with the lodged stones.

Yeah, my father also had a few kidney stones when he was younger. And my cousin on my dad's side also has a gluten intolerance. Thanks to those that have voted so far!

beebs Enthusiast
beebs
Posted

What is C.Diff??

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      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
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