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Question About Results

heidi g.

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heidi g. Contributor
heidi g.
Posted

My genetic testing came back positive for carrying the genes. My blood work was negative. My biopsy showed damaged. He said it's possible for people to walk around with the genes and not have celiacs. He told me to try the gluten free diet to confirm and I been doing it since October 2011. I'm not getting this... Anyone else have results like mine?

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Sweetea888 Newbie
Sweetea888
Posted

My genetic testing came back positive for carrying the genes. My blood work was negative. My biopsy showed damaged. He said it's possible for people to walk around with the genes and not have celiacs. He told me to try the gluten free diet to confirm and I been doing it since October 2011. I'm not getting this... Anyone else have results like mine?

Yes. My blood work was either negative or non-conclusive. (It was almost seven years ago so I don't remember.) The gastroenterologist bet me $50 that I didn't have celiac disease but my internal medicine doctor was sure I did. I had already had a colonoscopy that didn't show any major problems a year before. My doctor insisted that the next colonoscopy have biopsies EVERYWHERE. I only had damage in one small area close to my ileocecal valve, but I was diagnosed with having celiac disease and went on the gluten free diet. I got better almost immediately. My problems with fibromyalgia improved immensely and my stomach problems stopped. Now I only have problems when I accidentally get gluten.

Note of caution...there is gluten in LOTS of things - salad dressings, salsa, soy sauce, spices, soup, shampoo, makeup.

There is a lot of information available about what foods are safe. Good luck.

Metoo Enthusiast
Metoo
Posted

My genetic testing came back positive for carrying the genes. My blood work was negative. My biopsy showed damaged. He said it's possible for people to walk around with the genes and not have celiacs. He told me to try the gluten free diet to confirm and I been doing it since October 2011. I'm not getting this... Anyone else have results like mine?

You aren't seeing any improvement yet?

Sounds like you have celiac, he just wants you to eat gluten free to confirm.

I went gluten free in November. I have had to stop eating eggs, and now lactose to feel better.

heidi g. Contributor
heidi g.
Posted
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I see an improvement on and off. But my nutritionist said she thinks because i have such a bad anxiety disorder and stressful life that my stomach isn't healing as fast as it could be. I can't tolerate corn, eggs, or alcohol

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

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