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Oral Allergy Syndrome And Celiac

Owlmuse

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Owlmuse Rookie
Owlmuse
Posted

I'm new to forums in general but I had a question I couldn't find answered anywhere. It seems that there are quite a few Celiacs out there who also have Oral Allergy Syndrome (the cross-reaction condition where your body views certain fruits, nuts, and/or vegetables as tree pollen, grass pollen etc). I am one of those number. I had read a couple posts (which was also suggested by a friend of mine) that some oral allergy symptoms can decrease once Celiac is diagnosed and a Gluten free diet is begun. Have any of you out there heard of this or found it to be true (or false)?

I was diagnosed with Celiac only two weeks ago and have been Gluten Free since. It's limiting and I'm finding the "forever" part of Gluten Free rather daunting. I was just curious if there is a glimmer of hope on the horizon like getting to eat a fresh apple for the first time in 10 years. My Oral Allergy is limited to my lip, palette, tongue and upper throat which I believe is typical. I'm only (severely) allergic to the tree pollen but all nuts, fresh fruit, and most fresh veggies (except leafs like lettuce and endive) have been out for me for a decade. I'm 23 and forever seems a really long time. Anyone have or have heard of OAS being influence by gluten-free? My thought to it is that your immune system will calm down on gluten-free and perhaps react less. I'm not a science-y person but it was just a (hopeful) thought. Thanks for reading! :D

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cassP Contributor
cassP
Posted

oh i cant help u here... i just developed what i believe to be OAS after going gluten free- but to be honest- i dont think it had anything to do with me going gluten free. it happened almost immediately after i got dx with Hashimotos (and later Graves too)... and got on Thyroid meds... then i became allergic to certain foods... but not all the time, and usually raw- especially carrots.. its really strange, and im suspecting OAS.. because it's worse when the pollen is high.

i ASSUME my immune system is on hyperdrive from thyroid meds and decades of undx thyroid disease, and possibly my adrenals being out of whack..

you're gonna be all around much healthier after going gluten free- and have a better working immune system- (balanced)... but i really cant tell u how it will affect your allergies-

good luck to u- and be careful... if it makes u feel any better- i cant eat apples cause i get intestinal cramping :/

Owlmuse Rookie
Owlmuse
Posted
  • Author

That's really interesting, I have Grave's too! I know it has a correlation with celiac but with OAS too? I was diagnosed with OAS 10 years ago, Grave's 8 years ago and Celiac 2 weeks ago (although I was told I probably had it longer than I have had Graves). It's interesting you were diagnosed for the same three conditions in a very different order. I doubt that means anything I just find it interesting. It's nice to know someone out there is dealing with a similar situation ;)

suz2024 Newbie
suz2024
Posted

Wow, I feel like I am reading about myself!! Just yesterday I realized I suffered from OAS since I was a teen. I was dx with Graves in 2006, and the women in my family were dx with Celiac in 2009.

I found this information out because I wanted to start making smoothies in the morning but I could not use fresh fruit because of my reactions.

Nice to meet others like myself.

Suzette

Owlmuse Rookie
Owlmuse
Posted
  • Author

See this is what was making me curious about the relationship of OAS and Celiac (and now Graves). I mean it could be all a coincidence. I don't know.

cassP Contributor
cassP
Posted

i have Hashimoto's as well... i imagine with my symptoms that i had Hashimoto's 1st.... Celiac & Graves later... im just guessing on the OAS... but ive been in OVERDRIVE since starting thyroid meds for Hashimoto's... i had heard that the meds at first "feed" the thyroid attack.. and i know that adrenals are exhausted with thyroid conditions... i began reacting to certain raw produce after getting on meds... its very strange and ANNOYING.... like i dont already have enough foods i cant eat :(

thyroid disease & gluten intolerance go hand in hand :/

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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