Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question


lichjen

Recommended Posts

lichjen Rookie

Ok, first off I DO NOT HAVE INSURANCE so i can only see the health dept and you don't get good care there. I am speaking with a doctor soon but I would like opinions.

Ok, I have never been tested for celiac, but I am ALWAYS tired after I eat, unless I eat low carb. Recently I have had rapid weight gain, and how I have this HORRIBLE rash on my stomach. I am tired of being tired -even after good sleep.

I googled my symptoms and Celiac came up but I never thought of it before!

Here are my daily symptoms

excessive tireness

rash

weight gain

constant bloating

even more sleepiness after eating *unless low carb*

Ok, WWYD, should I try to cut out gluten or am I way off here. Having no insurance stinks LOL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

You'll have nothing to lose if you go gluten free, because you'll know you've made the right choice when you start feeling better. If you don't go gluten free, there's the possibility that you will lose what good health you have left.

You may have other symptoms that you haven't thought might be related to celiac or gluten sensitivity, such as muscle pain, joint and connective tissue pain, carpal tunnel pain, neurological problems (migraines, dizziness, seizures, neuropathy, etc.), anemia, frequent illnesses, weak tooth enamel, infertility, etc.

It might really be worth it for you to try the gluten-free diet for a while, but keep in mind that you might have other food sensitivities, too.

lichjen Rookie

actually, i am always hurting muscle wise esp in neck, i have migraines and recently out of now where started having seizures

mommida Enthusiast

just keep in mind, gluten free is all or nothing. Don't think that 'gluten lite" is something to play around with. People who had no symptoms before going gluten free now have reactions. if you experience better health on a gluten free diet, you will never do a gluten challenge for medical testing.

Go easy on your wallet and stick to naturally gluten free foods. IMO the processed gluten free breads really aren't that great. To get used to eating them toast or grill them.

lichjen Rookie

well the health dept refused to test me for it, looks like I'm going to have to wait to be tested til I get insurance. But I am going ahead and starting tomorrow.

rosetapper23 Explorer

Good for you! Now is the beginning of your new life....

maximoo Enthusiast

go to the director! start with an email. I too have county ins & had a little bit of a hard time with them but I persisted & eventually got tested. So put on your toughest armor,& go get' em!( it duzn't hurt to exaggerate a little --for the purposes of getting tested of course)

I know you are anxious to feel better but you need to consider holding off on going completely gluten-free--b/c if you finally convince them to test you, you'll want to have the best chances for a positive result & that means staying on gluten--but you can certainly lighten up on ur daily consumption. There are false negatives too so be prepared for it. Even if you get tested & its negative you can then still try a gluten-free diet for awhile & see how you feel--u might be gluten intolerant but not a celiac. Lots to think about so consider your choices carefully. Good Luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

If you're in the US or Canada you can order a GlutenPro home celiac test kit. Open Original Shared Link In Europe the kit is marketed as Biocard and it should be available in pharmacies.

Do not go onto the gluten-free diet yet if you want to do a home test or pursue testing through the health dept. The test will not be reliable. I wouldn't recommend changing the amount of gluten in your diet at all - it's HARD to get a positive and you don't want to throw it off.

Once you've gotten some testing, give the diet a go. It may help. :)

lichjen Rookie

Ok, I have been doing this for a few days (I did not see the post on it not being reliable if I started) My scalp - which has itched, DAILY since I was 12 (I am 31) has NOT - besides the cold I am getting (since I was in the health dept all day Thursday) I am feeling better

I go back on the 16th of March and I am going to report to the doctor on how things are going (I only saw the PA then)

I hate my county - they do things the cheapest way possible. they give NO samples, even if you are homeless making no money they still charge to see you (i was this way a while back) I have a bunch of issues to talk with them about and I have to go see them for EACH issue -

oh yeah, I had a rash on my abdomen - they wanted to give me a cream - which cost $50 (I did not pick it up) - since starting gluten free, it's clearing up!

My SIL was right! She suggested years ago I had this

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,776
    • Most Online (within 30 mins)
      7,748

    peskywabbit
    Newest Member
    peskywabbit
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.