Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Gluten Sensitivity Go Away?

basilicious

Recommended Posts

fayedelasflores Newbie
fayedelasflores
Posted

The idea of living gluten-free may seem daunting at first, but especially if you like to cook anyway, it's not bad at all. That said, should you find yourself "tolerant" at some point in the future, keep in mind that gluten-free is actually a very healthy way to eat, even for those who don't have to! Sans-gluten, your body uses your food more efficiently, so many people see a positive change in their metabolism & weight, along with improvement of other health issues, not to mention their overall well-being. But gluten-free or not, good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


basilicious Explorer
basilicious
Posted
  • Author

All, thanks for your encouragement and advice. I wanted to mention that I called the lab that did my celiac panel, and they confirmed that they completed the more specific IgG anti-deamidated gliadin peptide antibody assay. I think you're right and that my GI misinterpreted it and/or just isn't familiar with the research! However, I received a copy of the letter my neuro sent my GP, and she alluded to positive blood test results...so even though my GI and GP seem a bit confused, my neuro seems on point. I could tell she was different when she criticized Western medicine for its reluctance to diagnose gluten sensitivity and celiac.

Still haven't read the articles provided due to work constraints, but you can be sure I'll be discussing them with my GI and neuro when the time comes. Thanks again for such valuable insight.

Skylark Collaborator
Skylark
Posted

Glad we got that sorted out! Your neuro does seem more on point. It seems like neurologists are really catching on to celiac/gluten intolerance. I have a friend whose neuro suggested her idiopathic neuropathy could be gluten. Sure enough, it was.

I really hope being on a "celiac safe" diet starts to help with your health issues. :)

IrishHeart Veteran
IrishHeart
Posted

I really hope being on a "celiac safe" diet starts to help with your health issues. :)

Ditto from me! :)

  • 1 month later...
phyller Newbie
phyller
Posted

Thank you for the thoughtful replies. I have gone back and forth on the legitimacy of my negative celiac diagnosis, but my action plan is to get the genetic testing as well as testing for SIBO and hypochlorohydria and go strictly gluten free, as if I had celiac, for 3-6 months. Part of the problem has been that my neurological symptoms resolve almost entirely, and pretty quickly, once I'm off gluten, but I've experienced inconsistent resolution of my digestive symptoms, especially the bloating. It's hard to know if I should chalk it up to broader leaky gut syndrome -- i.e. not gluten-specific -- or if I could actually have undiagnosed celiac and am just experiencing the normal ups and downs of the healing process. I also haven't ruled out other food sensitivities and am going to resume my food journal. I'll be on a GFD for the next few months regardless, but if I don't have the genes, at least I will be less concerned with a false negative on my blood tests and biopsy, and I'll be less concerned about the auto-immune effects of cross-contamination. [Note: I did get the total serum IgA done last week, and I am not deficient (my result was 273 with a normal range being 68-378mg/dL). EMA IgA was also negative, but no range was given. My Vitamin D was astoundingly good at 50, with normal range being 30-89.]

Since I have tested negative for celiac and have no history of it in my family (my mom just got a negative blood test result last week), I'm inclined to accept the "diagnosis" that I am NCGI and then try to reintroduce gluten in a few months. However, if I have the genes, given that so little seems to be understood about NCGI, I will be left wondering if there's hope of its resolving at some point or if I should be just as vigilant about CC because NCGI may be a precursor to celiac after all...I will cross that bridge if and when I find out I have the genes. I will let you all know how my additional testing goes.

Hey, I am totally new at this, and hopefully your symptoms are resolved by this time. It sounds like what is happening to you is what happened to me. When I went off gluten I felt so much better, but my digestive issues weren't all resolved. It turns out I had become intensely lactose intolerant, that was what was causing the bloating and more acute digestive symptoms. Once I cut out lactose everything was good and I felt like a new person. A very hungry, but much healthier new person.

This is pure speculation, I don't have the expertise of others on this board, but I think that the damage to my intestines from gluten sensitivity caused the lactose intolerance. Both coming up at once made it a lot harder to figure out what was happening. I was trying to figure out what foods were associated with my problems, then eliminating things from my diet to try to specifically identify the culprit. I would cut out one and feel a little better, but then the other would still cause me problems and I thought I was wrong. Fortunately, eventually I noticed the difference in the two reactions and realized what was happening. Gluten was more insidious, I could feel it in my gut but it also made me feel bad all over. Lactose was really acute, I felt like I was going explode, but the rest of my body was fine.

basilicious Explorer
basilicious
Posted
  • Author

Hey, I am totally new at this, and hopefully your symptoms are resolved by this time. It sounds like what is happening to you is what happened to me. When I went off gluten I felt so much better, but my digestive issues weren't all resolved. It turns out I had become intensely lactose intolerant, that was what was causing the bloating and more acute digestive symptoms. Once I cut out lactose everything was good and I felt like a new person. A very hungry, but much healthier new person.

This is pure speculation, I don't have the expertise of others on this board, but I think that the damage to my intestines from gluten sensitivity caused the lactose intolerance. Both coming up at once made it a lot harder to figure out what was happening. I was trying to figure out what foods were associated with my problems, then eliminating things from my diet to try to specifically identify the culprit. I would cut out one and feel a little better, but then the other would still cause me problems and I thought I was wrong. Fortunately, eventually I noticed the difference in the two reactions and realized what was happening. Gluten was more insidious, I could feel it in my gut but it also made me feel bad all over. Lactose was really acute, I felt like I was going explode, but the rest of my body was fine.

Thanks, Phyller. Your comment is dead on actually. My neurological symptoms have generally dominated, so perhaps I have not been as tuned in to some of the digestive symptoms, or just had not taken them as seriously because the gut somehow felt less important than the brain...so silly in hindsight since they are so clearly interrelated. Anyway, after reading others' comments about lactose intolerance during the healing phase, I stopped having greek yogurt for breakfast every morning, and that has definitely made a positive difference. When I tried reintroducing it, the bloating returned and my energy plummeted. Eggs are on the breakfast menu for the foreseeable future! :)

I have had this notion that I caught my celiac in its earlier stage, and that the intestinal damage may not be too bad, but honestly, that may just be some lingering denial. I think I've been healing pretty rapidly all things considered, but the lactose intolerance suggests that things were a bit worse than I had hoped...a little disheartening, but I am on the right track now. Thanks again for sharing your experience.

  • 3 years later...
feelbetter88 Newbie
feelbetter88
Posted

Hi everyone,

I've suffered from severe gluten intolerance and IBS for years and I've been working on getting better for a really long time. Tested negative for celiac but that was after a year totally gluten free. Anyway, after much trial and error I am almost symptom free. I use optibac one week flat probiotic sachets (only brand for me) every other day, follow the fodmap diet (or at least through downloading the app and following the guidelines I now know what foods give me issues). I feel a million times better, almost cured. No bloating, normal patterns, feel like I'm actually absorbing nutrients from my food and weirdly my intolerance to lactose seems to have gone away! Thought I'd share as it's taken a long time to get where I am (through little guidance from doctors as they didn't know how to help), but I feel almost back to how I was before. I think the sachets I mention work because that combine probiotics with prebiotics.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748
    Nick H.
    Newest Member
    Nick H.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...