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Symptoms


Jillybeanmi

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Jillybeanmi Newbie

I have not been formally diagnosed with celiac disease, however, I spent a few months in severe pain with gas and bloating. Gurgling intestines and severe constipation. I also then alternated with diarrhea, foam and mucus. I'm not trying to be graphic, but I've not read a lot about symptoms from real people and I'm curious. My digestive specialist said i have IBS, but I put myself on a gluten free diet and increased my fiber and feel better than ever. I read that in order to get tested for celiac I would have to go back on gluten and I'm not about to do that anytime soon. This is all very new to me and nobody once suggested I get tested for it. I learned everything through my own research. I had noodles one day after being on this diet for a while and had another attack. If I steer clear, I feel so much better and bathroom habits are back to normal. Any insight??


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heidi g. Contributor

If you feel better stay on the diet. My blood test came back negative and my biopsy came back positive. And my genetic test came back positive. My symptoms were: extreme bloating, constipation, some diarrhea, lactose intolerant (which I have never been before until I got sick) extreme nausea, gas, indigestion, acid reflux, and basically every symptom of gerd.

Candicep Newbie

I havn't been formally diagnosed either but these are the symptoms I am experiencing:

Since I was pretty young i've had GERD, fatigue, depression/anxiety, lactose sensitivity, and diarrhea off and on. Just in the past couple of years (im 29 now), new symptoms have developed including: bloat/stomach swelling, shortness of breath after eating sometime, foggy brain/memory issues/ irritability, white spots on skin, numbness in hands/joint pain in fingers, bladder pain/pressure, and extreme menstrual cramps (never had issues with that til the past year. I literally passed out/went to the ER bc of the pain/pressure). The menstrual issues might be something different all together but i've read it could be a symptom.

I can't wait until I can get some form of medical insurance. Ugh.

addis001 Apprentice

First 6 months--SEVERE fatigue (had trouble waking up)

Next--Unexplained nausea, sometimes even vomitting, constipation and back aching like I had a gallstone attack (I have no gallbladder), and the feeling of not wanting to eat, along with unexplained weightloss.

Next-Pain under right rib, shooting through to back almost like a kidney stone or gallbladder attack, I've been scanned for both multiple times.. No stones, no gallbladder, no stones in bile duct

Then---Irritable, depressed, sleeping all day long, pain, no energy, nausea, diarrhea (this one hit last), Diarrhea comes after very intense pain and its a horrible smell, Horrible gas, horrible smelling poop, but when I pass gass or burp I feel better..

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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