Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low B-12?


SunshineStateGirl

Recommended Posts

SunshineStateGirl Newbie

Hi All --

Please forgive me if this is the wrong forum for this question!

I just tested negative for celiac (via blood work, my tTGA was <3 and my serum IgA was 232 -- so pretty unequivocally negative). But, in addition to some annoying GI symptoms (persistent soft stools, frequent diarrhea) I also suffer from anxiety (which manifests as butterflies in my stomach, inability to concentrate, low tolerance for sensory input). My anxiety has been constant for many years, despite an otherwise calm and happy life.

In addition, routine blood work just showed that I am very deficient in B-12. My level was only around 250, despite eating plenty of red meat, eggs, chicken, and fish AND taking a B-complex with over 600% of the RDA for B-12. My doctor agrees that I have an obvious absorption issue, but has no clue what's causing it. My vitamin D levels were also low (22), but my folate was normal. All other blood work (including iron and RBCs) were normal.

I know that celiac can cause issues with nutrient absorption (which is why I was tested), but would it be specific to B-12 and not folate? Can non-celiac gluten intolerance cause issues with nutrient absorption?

Help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

These are the tests you need to have to rule out celiac:

Anti-gliadin (AGA) IgA

Anti-gliadin (AGA) IgG

Anto-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total serum (IgA)

Your doctor only did the TTG and the total IGA.

You may want to ask him to do a full panel on you. Even with a full panel you can have a false negative.

You should also try taking a sublingual B12 to bring your levels up as a regular supplement may not be being absorbed.

Do not try the diet until all celiac related testing is done, including an endo if you are having one, and then give the diet a good strict trial for at least a couple of months.

addis001 Apprentice

If you have thyroid issues or adrenal gland issues.. I've heard B12 is a HUGE factor... I would get family doctor to test your thyroid, T3, T4, and antibodies.. Also your adrenal gland.. Then you need an endocrinologist.. Because it means you might have hasimoto's

SunshineStateGirl Newbie

If you have thyroid issues or adrenal gland issues.. I've heard B12 is a HUGE factor... I would get family doctor to test your thyroid, T3, T4, and antibodies.. Also your adrenal gland.. Then you need an endocrinologist.. Because it means you might have hasimoto's

I actually just had a full physical, including a thyroid panel, and my thyroid is picture-perfect!!

modiddly16 Enthusiast

250 is actually in the normal range for b12 levels, albeit on the low end. I had been having problems for awhile and finally pinpointed a b12 deficiancy...my levels were 50 hahaha...It's been a year on the shots and I'm still only up to 209 but have also started taking b12 tablets. I have no other issues (like listed above) other than being a celiac..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,204
    • Most Online (within 30 mins)
      7,748

    Donna Yunkus
    Newest Member
    Donna Yunkus
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...