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- trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1GI DX celiac despite neg serology and no biopsy
Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease. -
- Roses8721 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1GI DX celiac despite neg serology and no biopsy
Help. I’m spiraling. Years of extensive symptoms: What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sen... -
- miguel54b replied to Mrs. Cedrone's topic in Related Issues & Disorders7Canker sores
I get canker sores one hour after eating Oats, and pimples in my butt. -
- miguel54b posted a topic in Related Issues & Disorders0
Body dysmorphia experience
Body dysmorphia experience. When I was at the worst of my gluten problem I use to get chronic constipation; I would spend long time sitting on the toilet. One day as I was tired of sitting, I rested my head on my hands and my elbows on my knees, as soon as I felt the pressure of my elbows on my knees the perception of my body changed to that of a tarantula... -
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Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease. -
Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms. Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency. Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
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Help. I’m spiraling. Years of extensive symptoms: What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this.
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I get canker sores one hour after eating Oats, and pimples in my butt.
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Body dysmorphia experience. When I was at the worst of my gluten problem I use to get chronic constipation; I would spend long time sitting on the toilet. One day as I was tired of sitting, I rested my head on my hands and my elbows on my knees, as soon as I felt the pressure of my elbows on my knees the perception of my body changed to that of a tarantula; I visualized and it felt real. The perception went away as soon as I removed the pressure on my knees, I deducted that the pressure of my elbows on the knees caused the sensation, so I repeated the position and the sensation of having the body of a tarantula happened each time. I have not had that experience since then because I started a gluten-free diet short after. I wonder if those people that look distorted to themselves in the mirror could have something similar but with the responsible sensory contacts located on their feet. I want to document this experience because it might help some research or others, it sounds crazy but I feel the right thing to do is to share it.
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