Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Venting


angel-jd1

Recommended Posts

angel-jd1 Community Regular

Ok I just have to vent. I went out with some friends for supper tonight. I went ahead and ate before time. I knew we were going to Applebee's and they are not very celiac friendly. They put seasonings on their meats and even plain veggies aren't safe there.

I really thought I would be ok to just sit there and order a pop, seeing as I was full. I HATED sitting there and not getting some of the yummy coconut shrimp and pasta stuff and all the good smelling food.

I had fun, got to see people I hadn't seen in a while, but I hate feeling the way I felt tonight. Waiters kept asking why I wasn't eating etc etc. My waiter even bought my pop for me because he felt so bad!!

I really haven't had one of these "poor me" days in a while. I guess I'm due for one. Thanks for listening.

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Laura Apprentice

I hate those days!

I get them when I go grocery shopping when I'm hungry. I learned not to, but not until a couple times in the grocery store where I just about cried when I went past the frozen foods aisle, with all those pizzas. Now I've learned to shop when I'm not as hungry, and instead of crying, I stick my tongue out at things I can't eat.

Tonight, however, it's me and a bottle of champagne and a lot of Sex & the City videos and everything is good....(Dinner was cheeseburgers wrapped in corn tortillas...mmm) Gluten-free cookies later? Or ice cream? It's nice every now and then to take a night to have things I want and can have, and be totally decadent about it just for me. Then I don't feel so bad next time I can't have something I want.

hsd1203 Newbie

Guess the old "misery loves company" is true sometimes, but thanks for starting this thread as it makes me feel better that I was almost in tears at the grocery store tonight at all the things that looked yummy but I couldn't have... the worst are the foods that there is really no reason to put wheat in them but the companies feel the need to throw a handful in anyway (like my pre-celiac favorite kind of potato chips, for goodness sake) :( .

But on a happier note, I came home to find my (celiac) mommy had sent me super yummy gluten-free macaroons in the mail. Such a nice surprise and made me feel sooo much better.

So best wishes to everyone and hooray for the help this message board gives in keeping our chins up.

Guest jhmom

Jessica, I am so sorry about your night, I've had those too! :( After a while you get "tired" of explaining to everyone the reason you are not eating, it all gets very frustrating!!!

Maybe next time you and your friends can meet at a place where you will be able to not only enjoy their company but some of the yummy food too! :D

Hang in there :D

outthere39 Rookie

I know just what you are talking about (jessica), going out to eat can be down right miserable. I went out to a really nice restaurant a couple of weeks ago with a bunch of friends, and I wanted to scream. I ended up having a plate of sushi while others sampled everything on the menu. Needless to say I was still hungary. I am also sick of waiters and waitresses acting nimble minded when I try to alter a dish so that it is gluten-free. But the worse is my friends and new acquaintences asking repeatedly," do you want to try this...or why are you not eating>>even after I have informed them of being a celiac. I try eat out as little as possible and generally eat before doing so. :angry:

debmidge Rising Star

It's also depressing to go to a party like a wedding and not be able to eat anything, or being afraid to eat something plain that is normally gluten free.

guppymom Newbie

Wow, are we all having a time? I was asked to make dinner for an elderly, ill couple tonight, so I whipped a frozen veggie lasagne into the oven...one that we used to love, even though it made us sick. sigh. So it's cooking and it's all smelling so wonderful and I take it to their home, and THEY AREN'T HOME! They ditched me. So home it came and husband is going to eat it tonight. At the same table as the rest of us. Wanna bet there'll be drool over the top of it?

Remember my post about my daughter going to this day camp thing and how cool it was 'cause they were going to make food for her especially? ha. "it's too expensive to make non-gluten food, so we're having subs, she can eat the stuff on it and just leave the bread."

argh

I didn't even bother to explain about the condiments and the meats and etc etc etc.

i'm just sending food with her that she can eat. But good gosh. I thought we'd made some progress.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



danesmom Newbie

It's hard for me to understand what you have to cope with. My one year old is having his biopsy to confirm this on monday. It's depressing reading your messages and tears are rolling down my face as I type this thinking of him in your shoes. But thank you for sharing and making me understand a bit more into what he will - We will- have to begin dealing with.

Dane's Mom

Laura Apprentice

Not that it won't be terribly difficult for your son, but he won't have a chance to develop favorite foods that have gluten in them, so it'll be a different kind of difficulty. I guess it's like, would you rather be blind from birth and not know what you were missing or would you rather have the memory of sight so you know what other people are seeing?

It's also important to remember, for all of us, that the food situation gets better and better. In the 1970s my mom knew a woman whose son had celiac disease and she told my mom about trying to make him a birthday cake out of cornmeal. Now when I want cake, I just go to the grocery store and have several mixes to choose from, and so many different gluten-free flours to use to bake from scratch. As more doctors learn what to look for, there'll be more of us eating gluten-free, and more incentive for companies to make more and better foods for us to eat.

There are always going to be hard days, for sure. I have them often enough too. But at least on my birthday I can have a real cake!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.