Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"the Change..."


josh052980

Recommended Posts

josh052980 Enthusiast

I never thought I'd say I missed the days of nausea, diarrhea, constipation and all those "fun" bowel related issues, but I do. It seems my symptoms have changed to more neuro related ones. I've been glutened now for 2 days and had minimal bowel involvement, and much more pronounced body weakness, brain fog and I even lapsed near to migraine today (a timely dose of Advil saved me from full migraine though).

Did anyone else experience "the change" in their symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel85 Rookie

Actually yes, I noticed a slight change in my symptoms. I got glutened recently and although still had the typical bowel and bloating problems, I suffered terribly with exhaustion, headaches and my emotions - well I was just a blubbering wreck. In fact, it started almost a week ago and the exhaustion has stuck around (or that may just be from being in a class of 28 9 year olds!!).

Macbre Explorer

Mine have definitely changed too....I have the typical bowl symptoms for a few days, but the neuro last for several weeks. I was glutened 3 weeks ago and now I can't get rid of the eye twitch, ringing in the ears and the brain fog, not to mention the joint inflamation and being off balance. Headaches....that's a daily occurance for me right now so I know where you are coming from. The neuro is definitly lasting longer than before. Usually that was gone before the intestinal issues.

jdizzle Apprentice

I had different symptoms when I got glutened for the first time after I'd quit. I got lower back pain, sore sides and felt super faint. I also found the stomach pain I got when using the bathroom was much much worse.

hitchhikers Newbie

definitely. i haven't even cut out gluten for more than a few weeks at a time yet, and yet, over the past almost 6 months of on-and-off gluten free, my symptoms have gone from mostly intestinal (the fun alternating d+c that i had always put up to ibs before discovering the concept of celiac, fun) and slight muscle soreness, to a bit intestinal and severe, shooting rib pain, to more just general feeling like crap with not much intestinal distress at all, depending on how long i've had gluten cut out at the time that i get glutened again (which was really good for the tiny part of me in denial that wanted so desperately for gluten not to be the problem, of course). my cycling moods and labyrinthitis probably haven't helped.

right now, my reaction pm consists of fatigue, slight heartburn, and waking up the next day feeling like i've got run over by a truck. what it'll be in another week, month, or year, i couldn't tell you.

all part of the journey, i suppose.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,763
    • Most Online (within 30 mins)
      7,748

    Donna Williamson
    Newest Member
    Donna Williamson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.