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So Overwhelmed

amers310

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amers310 Newbie
amers310
Posted

HI Everyone,

Wow, thank goodness for this message board and all the great post and replies. This has been my main support since being diagnosed with celiac two month ago. Unfortunately I'm still not feeling well and am not even sure if gluten-free is really working for me yet. I went to my GI yesterday to get the results of my second set of celiac test and my IGG and IGA both increased. I have no idea how and I am so frustrated. I have watched every single thing I have put in my mouth. Prior to going gluten-free my Gliadin IgG was 105, now it is 138 and my Gliadin IgA was 17 now it is 24. Does anybody have any suggestions or thoughts on this. Could the numbers increase because I have been eating dairy? My doctor told me that my body may be rebounding and the numbers will eventually drop. I'm not sure if that makes sense at all. Any ideas would be awesome.

Happy Tuesday! Amy

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nettiebeads Apprentice
nettiebeads
Posted
HI Everyone,

Wow, thank goodness for this message board and all the great post and replies.  This has been my main support since being diagnosed with celiac two month ago.  Unfortunately I'm still not feeling well and am not even sure if gluten-free is really working for me yet.  I went to my GI yesterday to get the results of my second set of celiac test and my IGG and IGA both increased.  I have no idea how and I am so frustrated.  I have watched every single thing I have put in my mouth.  Prior to going gluten-free my Gliadin IgG was 105, now it is 138 and my Gliadin IgA was 17 now it is 24.  Does anybody have any suggestions or thoughts on this.  Could the numbers increase because I have been eating dairy?  My doctor told me that my body may be rebounding and the numbers will eventually drop.  I'm not sure if that makes sense at all.  Any ideas would be awesome.

Happy Tuesday!  Amy

<{POST_SNAPBACK}>

Every one is different, so recovery time is different too. You do have a dr that's monitoring you, which is good. Do you have another follow up appt? And have you checked all meds, otc's, health/beauty aids? Do you have a significant other that isn't gluten-free? My husband isn't, but he's real careful not to kiss me on the lips after he's had a wheat product or beer. Time is literally the healer here. Keep up the gluten-free diet, you will feel better.

KaitiUSA Enthusiast
KaitiUSA
Posted

I would say you are probably getting gluten in your diet somehow. Do you have the list of what it all can hide under? Wheat,rye,barley, and oats are in alot of things so you need to check everything.

Have you changed shampoos, makeup, soaps, lotions, and things like that to gluten free ones?

Some people have a problem with dairy until they heal but that should not increase your numbers.

Remember though, everyone heals differently-some faster and some slower but nevertheless the numbers should be going down and not up. Usually followup blood tests should be done like 6 months after being gluten free.

julie5914 Contributor
julie5914
Posted

Did you doc explain what he meant by rebounding? I have a feeling my numbers will still be high or higher when I retest too. My digestive symptoms are gone because I have stuck to the diet, but all the other stuff is coming out like crazy.

Do you have any symptoms that are sticking around? That is weird - definitely notch up your strictness even more, but otherwise I have no clue what you could do besides wait it out and hope they go back down. I think those numbers are specifically for gluten, or I would say perhaps it's a reaction to something else.

  • 2 months later...
julie5914 Contributor
julie5914
Posted

Amy, I now have the same problem as you. My numbers were still high but I am gluten free. My theory is that my body is mistaking casein for gluten and reacting as though is gluten, causing the elevating numbers. Don't know if that's true or not, but for now I'm cutting all dairy to see if it helps. If it makes me feel better I'm sticking with it at least till I get testing around Christmas time. Did you ever figure out what was going on with you?

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