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Vitamins?


Pandoranitemare

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Pandoranitemare Apprentice

I don't eat meat (but I do eat fish, but not every day), so I regularly take multivitamins, omega3 oils as well as a calcium+vitD supplement (because I don't really have dairy either, apart from a little yogurt), I prefer almond milk etc.

I know that vitamin deficiency is often seen in celiacs, but I am wondering if taking vitamins would counter that, or is it a case that no matter how many vitamins you take they just won't be absorbed? Or is is good idea to take them?

I am wondering if during the process of finding a diagnosis, if I am taking all these vitamins it could mask a deficiency?, and therefore not show up a potential problem.


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Bubba's Mom Enthusiast

I asked my Dr. about this when first DXed. She said that vitamin supplements contain higher doses of the vitamins than one would normally get from eating the food. If there is any part of the intestine that isn't damaged, you will absorb something, and that will help you from getting too low on vitamins.

Whatever isn't absorbed will just make expensive urine.

I use several supplements, along with probiotics. They help keep the flora in the intestine balanced and help digest your foods.

Pandoranitemare Apprentice

Thats great, thank you.

So I have potentially been doing myself some good :)

I don't suppose it matters if I am taking the vitamins during gluten challenge?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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