Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Horrible About Glutening Of My 8 Year Old Boy


velveeta

Recommended Posts

velveeta Rookie

Feeling scared and awful... We have been gluten free for 18 months (our whole family-- dh, me, and our three kids). Never had a major glutening. Last year, my son ate a wheat cookie that someone gave him, and he was very ill for three weeks. Plus, he has dermatitis herpetiformus And it was so awful!

Last time, there was a few days lag before the sickness. Well, he went to a party on Sunday where I had even made the birthday treats for the entire group! And the venue provided wheat cake. UGH! We are dairy free and sugar free, too and there is no telling what was in that cake!

He is already super irritable and sleep walking and having stomach pain. I am really scared he will start non-stop vomiting in a day or so as he has done before.

It is torture watching him suffer. Of course, I am HATING myself for not being there. I was gone one hour, and I thought I had made good arrangements. Honestly, the party was given by a friend in my inner circle, so a high level of trust. It was just a perfect storm.

Just so sad and miserable....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

I have no idea if this would work, but could you try some ginger root on him ?

You can also experiment with him drinking a lot of water to try to flush it out. He may not want to eat much of his regular food, humor him.

Do not beat yourself up too much, just resolve to try to do better next time. Alas for almost all of us, we need to be trained to always say no to other people's food in social situations, always. Only cooks, some older people who were forced to take "home economics" in school, (and celiacs) actually have any idea what is really IN food these days, the rest of them are stumbling around in the dark, happily oblivious.

When they say "Devil's Food Cake" they aren't kidding. :ph34r:<_<:(:o:huh::angry::blink:

Benshell Explorer

First - it is not your fault! Whomever was left in charge was responsible for giving your son gluten. Had it been a severe peanut allergy, would they have not said anything???

I found water and sleep are the best medicine for being "glutened". He needs to get it out of his system to feel better. I know its not a medical treatment, but the only thing that I found helps is pepto, tons of water/broth and naps. Sometimes ginger candy drops.

To prevent something like this happening in the future:

How much have you taught him about celiac and being gluten free? My daughter is 8 also and has been gluten free for almost 3 years now and knows that she doesn't eat anything that mom hasn't given her. People have made her gluten free cupcakes and she will still refuse to eat them as she tells them "you don't know how to avoid contamination" then proceeds to give them the 'butter example' - when you use butter on your toast, you leave crumbs in the butter - that is gluten contamination and can get her sick. People are usually shocked at this coming out of the mouth of an 8 year old and only a few are offended, but she needs to consider her health first. The only snacks she eats at friends houses (I usually provide a gluten-free one for all the kids) is fruit and carrots and only if it's washed off in front of her eyes.

Teaching him to be responsible is the best thing you can do for himself and for you. I keep thinking, what am I going to do when she goes to college. The kids need to learn now so as they grow older and are more independent (being left alone at parties) they can assert themselves or decide what they can or cannot eat. If they make a bad choice, they pay the price. We never want to see our kids sick, but in a way, its the only way they'll learn.

Skylark Collaborator

Poor kiddo. You can't blame yourself. No matter how vigilant we are, gluten seems to slip by. You are doing well if your son only gets into gluten once a year! He will be miserable for a bit but he will be fine. Pepto-Bismol is my remedy of choice for gluten.

As Benshell mentions, you can use this as a teaching opportunity. You need to be sure your son connects how he feels to wheat in the cake. Unfortunately, it can be hard for kids to connect an action to a very delayed consequence. He needs to learn that he must say "no thank you" if he's not sure the food is gluten-free, or he could be sick a couple days later.

  • 2 weeks later...
xjrosie Apprentice

Poor kiddo. You can't blame yourself. No matter how vigilant we are, gluten seems to slip by. You are doing well if your son only gets into gluten once a year! He will be miserable for a bit but he will be fine. Pepto-Bismol is my remedy of choice for gluten.

As Benshell mentions, you can use this as a teaching opportunity. You need to be sure your son connects how he feels to wheat in the cake. Unfortunately, it can be hard for kids to connect an action to a very delayed consequence. He needs to learn that he must say "no thank you" if he's not sure the food is gluten-free, or he could be sick a couple days later.

Ditto. You will never be able to prevent every possible glutening. Just always be prepared for what comes next by keeping the usual "sick" supplies on hand at all times.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.