Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New York And Indianapolis

UKGail

Recommended Posts

UKGail Rookie
UKGail
Posted

Hi everyone. I've been basically shutting between home and work for the 6 months since going gluten free, and have only eaten a couple of times at trusted friends places. I have fairly strong reactions to airborne gluten and gluteny smells (mainly neurological), so am not keen on eating out unless it is in a gluten free place. At this point in time I also still need to keep to a mainly meat, fish and produce diet.

My family have decided they want to fly to New York and then have a road trip to Indianapolis to catch up with family we haven't seen for a few years for our summer holiday. Does anyone have any suggestions about self-catering accommodation in either of these places, and/or any gluten free restaurant/cafe recommendations? For New York we would stay in either Manhattan or in Westchester.

I am also a bit nervous about driving across country to Indianapolis, not because of the distance (we drove 2,000 miles last summer in Europe when I was sick and didn't know why...) but because of the difficulty of access to safe food during a long journey without all the usual picnic supports from home.

Any advice from more seasoned celiac travellers or residents of these places would be very welcome.

Thank you very much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ndw3363 Contributor
ndw3363
Posted

I live in Indianapolis and we do have some restaurants that may work for you. Not sure since you seem to be super sensitive to even the environment of the establishment. If this is true, you may have to do take out, but you would know best for that. I don't know of any strictly gluten free restaurants in the area. My favorite sit down restaurant is Cooper's Hawk winery - I've never gotten sick there. Their gluten-free menu is extensive and I go multiple times per month (the Napa Chopped Chicken salad is my new addiction). For quick and easy, I like Jason's Deli. This may be a problem for you to go there if you are super sensitive to inhaling anything as they do have regular bread around. But again, never had a problem there myself. Unfortunately, I can't help you on the roadtrip aspect since I haven't had to do one since becoming gluten-free. I would just pack a large cooler of safe foods that you know you can have and then picnic at rest stops. It's cheaper this way too! Hope you have a great time in our city!!

UKGail Rookie
UKGail
Posted
  • Author

Thanks so much for responding ndw. Cooper's Hawk looks great, with yummy food. I seem to be ok if I am in a room that is large and well ventilated, so this might be ok, if you trust them. The deli looks more problematical as its menu is bread-based. We have a small cafe in our neighbourhood which does lovely fresh home-made food, and its extensive selection of home-made cakes are mostly gluten free. When I found out I was gluten intolerant I thought "great, I still have a restaurant nearby to go to". Wrong! I went there to buy one of their gluten free cakes, and felt like I had been hit by a wall of flour as soon as I walked through the door. I had a similar experience at our local small deli, when trying to buy a bagel for my daughter. I realise this is not a typical celiac reaction, and may be an allergy instead.

Thank you for your advice. I have printed off the details for Coopers Hawk, and will save them for the trip.

Jestgar Rising Star
Jestgar
Posted

You could get a little cooler for the car: Open Original Shared Link. Get some lunch meat, cheese, whatever at a store and you are set.

curlyfries Contributor
curlyfries
Posted

I'm from Indianapolis but don't eat out much. You might try going to www.glutenfreeindy.com and joining the on-line support group. They can give you some great ideas on where to eat.

UKGail Rookie
UKGail
Posted
  • Author

Jestgar and Curlyfries - thank you very much for your suggestions. The cooler looks like a good idea, and not something I've seen in the UK. I'll give the indy support group a try too, thank you.

I am still having to think about whether I can go or not (or at least travelling any further than NY) as I am still struggling to eat anything out of a packet (I have a very, very limited list of items I am ok with). I tried peanut butter again on Friday and spent the whole weekend with all the usual lovely symptoms of a full-on glutening. It was a new jar, so I can't blame anyone else for double-dipping.

It feels a bit like Hobsons choice, do I go and risk ruining the holiday for the rest of the family if I get sick, or not go and miss out, and make my poor husband do all the work looking after the kids? They are teenagers so we only have a few years left of them agreeing to go on holiday with us anyway.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      Supplements for those Diagnosed with Celiac Disease

      yes i do take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the...
    2. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    3. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    4. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    5. trents
      - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      yes i do take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      Is it gluten?

      By trents · Posted

      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.