Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wish Me Luck!

ukdan

Recommended Posts

ukdan Rookie
ukdan
Posted

So after what feels like two long months my endo/colonoscopy is tomorrow and to be honest I can't wait!

This challenge alone has been enough to convince me that gluten obviously doesn't agree with me and I fully intend to remove every trace of it whatever the results.

I'm not really seeking advice, more just sharing my experience for anyone in the same boat and wondering whether to test or not. For me it has been rough but also for my peace of mind I also wanted to make sure there is nothing more sinister going on.

Is it wrong to be hoping it to be coeliac?! I know its not fun sometimes but I'm quite prepared for going gluten free again with the advice I've picked up on here and looking forward to getting my life and health back on track!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


youwillrise Rookie
youwillrise
Posted

I kinda feel the same way. I'm hoping it's celiac because I can make lifestyle changes and be in control...and eventhough ill always have celiac (IF I do have it, I mean), it makes a difference knowing that I can do something to reduce the crazy symptoms and actually feel good. of course, i'd rather not have any disease, but if I'm gonna have one...I wish it to be one that I can fix and if I can't "fix" it...id like to be in control of it.

Best wishes with your endoscopy...hope all goes well! I'm still in the blood testing phase. I've been thinking of the possibility of an endoscopy...it scares me. Haha. I'm such a wuss. I'm not sure ill have the GUTS to do it...

Yeah, I know...cheeeesy.

Ninja Contributor
Ninja
Posted

I'm right there with you

ukdan Rookie
ukdan
Posted
  • Author

I definitely understand what you mean youwillrise about control which is probably why I'm hoping for celiac/gluten sensitivity rather than anything else!

I had my blood test earlier in the week, my doc has been very understanding and arranged all the tests around the same time to limit the inconvenience so in theory I'll get all my answers in one go. Will let you know what happens!

tennisman Contributor
tennisman
Posted

I think it's wrong to hope you have Coeliac disease because it really is a horrible disease but I can understand why you want it so you can find out what's wrong and get better :) Good luck !

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I understand wanting the Dx. It lets you put a name to your health issues..and gives you a treatment plan. Much better to know and control it, rather than go through years of ill health, lots of useless tests, and the opinions that you are a hypochondriac.

The scope isn't a bad test to have. You don't feel a thing.

Good luck!

ravenwoodglass Mentor
ravenwoodglass
Posted

Good luck with the scope. I hope you get some answers but do keep in mind that false negatives are fairly common so do try the diet strictly after your scope is done. You don't need to wait for the results.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ukdan Rookie
ukdan
Posted
  • Author

The scopes went fine and the gluten free diet (take 2) has started! The doc said it all looked clear but took biopsies to look at 'just in case' *rolls eyes*.

Will see if they say the same when they actually look at the biopsies properly, although apparently that may not be for another month- the wonders of the NHS!

youwillrise Rookie
youwillrise
Posted

Glad to hear! Here's to you and your health. ; )

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,834
    • Most Online (within 30 mins)
      7,748
    SamAlvi
    Newest Member
    SamAlvi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.