Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was I Glutened?


zeeclass6

Recommended Posts

zeeclass6 Explorer

I have been gluten-free for 2.5 months and dairy-free for 1 month. I have not done a food challenge yet since going gluten-free and DF, so I don't know what "being glutened" might feel like. As far as I know, I don't have Celiac, but I definitely am gluten-sensitive.

Wondering whether I experienced my first time "being glutened." Last night, we had Ethopian food. They said on their menu that they can make gluten-free Injera bread, made with teff. I had some. They told me there was no gluten at all in my meal. Felt fine afterwards, all the way until bedtime. Then this morning, woke up feeling really dizzy and had a bad headache. I also seem to be farting more than usual, but I don't feel bloated.

The sauce that the chicken was in had some clarified butter (I'm also dairy-free at the moment, but thought that clarified butter would be OK). I didn't eat much of the sauce, only a very small amount, but the chicken was cooked in it.

What do you think?

My other idea is: I have had a really rough few days, being very upset because I found out that I will need hip surgery because my hip cartilage is torn. So I haven't been sleeping enough or sleeping well. Maybe it's just all "everything catching up with me."

This morning after forcing myself to eat some breakfast, I took two Ibuprofen and laid down on the sofa. I slept for 2 hours. Still didn't feel so great. After a while, I drank some Gatorade. That really helped. But now the headache feels like it's coming back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I have been gluten-free for 2.5 months and dairy-free for 1 month. I have not done a food challenge yet since going gluten-free and DF, so I don't know what "being glutened" might feel like. As far as I know, I don't have Celiac, but I definitely am gluten-sensitive.

Wondering whether I experienced my first time "being glutened." Last night, we had Ethopian food. They said on their menu that they can make gluten-free Injera bread, made with teff. I had some. They told me there was no gluten at all in my meal. Felt fine afterwards, all the way until bedtime. Then this morning, woke up feeling really dizzy and had a bad headache. I also seem to be farting more than usual, but I don't feel bloated.

The sauce that the chicken was in had some clarified butter (I'm also dairy-free at the moment, but thought that clarified butter would be OK). I didn't eat much of the sauce, only a very small amount, but the chicken was cooked in it.

What do you think?

My other idea is: I have had a really rough few days, being very upset because I found out that I will need hip surgery because my hip cartilage is torn. So I haven't been sleeping enough or sleeping well. Maybe it's just all "everything catching up with me."

This morning after forcing myself to eat some breakfast, I took two Ibuprofen and laid down on the sofa. I slept for 2 hours. Still didn't feel so great. After a while, I drank some Gatorade. That really helped. But now the headache feels like it's coming back.

It's very possible that you were glutened. There are many ways for cc to happen in restaurant kitchen, even if there was no wheat flour used in your food. It could come from a CC pan, grill, serving utensil, etc.

Drink a lot of water to help flush your system.

I hope you feel better soon.

zeeclass6 Explorer

Thank you for the reply.

I still have a headache today but am not dizzy. It almost feels like a bad sinus headache, but my sinuses are not stuffed up. My face just really hurts and my ears are ringing more loudly than usual. I have also been dealing with a bit of brain fog, finding it hard to think straight.

The more I think about it, the more I am convinced that I was glutened.

I don't even like Ethopian food that much. I went there to please my husband.

I will not do that again. If he wants to eat something questionable, he can go there by himself.

tom Contributor

Hope you feel better quickly.

I've wondered about trying clarified butter since it should be casein-free. It's the phrase "in theory" that gets in the way.

Looks like symptom-wise you're pretty sure it's a glutening. Seems too often I'm in a situation where i'd like to test something but really really don't want to make myself sick while one test outcome is precisely that. If I test often enough it almost guarantees that sometimes I'll be sicker.

If you end up testing clarified butter away from Ethiopian places, let us know how it goes.

Again, hope you're feeling better quickly.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    4. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748

    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.