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Just Found Out 2 Out Of My 4 Kids Have Celiac

Mommax4

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Mommax4 Newbie
Mommax4
Posted

I as well have been told I have it. The day before my 33rd birthday...guess no cake for me as I don't even know where to begin making a gluten free one.

Can you all give me an idea what I could do for school lunches so he doesn't feel "out of place" with his friends. We are both trying to do a lot of reading so he doesn't feel out of the loop on learning about himself.

My 15 month has it too, she will be easier because she can just eat what I do an no one to rib her.

I'm trying to read all I can, but I would love some good ideas. Thanks in advance!!

Lisa

Momma to

Jesse 14

R.J. 12

Jacob 11

Joani 15 months

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PicturePerfect Explorer
PicturePerfect
Posted

Happy Birthday!

Do you have a Whole Foods or Mothers Market or any of those kind of stores by you? Let your son pick out what he wants. Lays and Cheetos are gluten-free. Um, get some gluten-free cookies. Stuff like that.

Good luck! Oh, and don't worry, it gets easier! :)

Although I am not an expert, you can e-mail me if you need anything!

Lisa

Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

Open Original Shared Link

I order lots of tapioca white rice bread from kinnikinnick. They are great. Shipping is only $10 on orders up to $200. I make my kids half sandwiches sometimes and suppliment with other things. You might consider yogurts, cheese sticks, fruit, trail mixes, nuts, yogurt raisins.... My kids get very hungry if I don't pack enough protein. Fruit is nice, but leaves my kids hungry. My kids are really lean and must have fast metabolisms, though.

So, once you get your bread, you're good to go on sandwiches. Have deli clerks clean slicesers prior to cutting your meats. Check meats for gluten.

Kinnikinnick makes great donuts, pizza crusts, and bagels and bread.

Oscar mayer bologna, hotdogs

Chebe bread can be rolled around a hotdog for a "corn dog".

Chebe is great for buttered buns with soups and stews. Also makes excellent "hot pockets". Fill with what regular Hot pockets are filled with or anything else you can think of.

I roll Chebe into Pizza sticks. Add chopped pepperoni, mozz cheese, tons of garlic salt and extra olive oil. Bake, send to school with a tupperware side of spaghetti sauce for dipping.

Cheese sticks with a side of sauce is good too and filling.

Tinkyada pastas are the best and can be sent to school in a thermos with sauce or Velveeta cheese for mac and cheese. Tinkyadas hold their shape, don't turn to mush like most gluten-free pastas and are highly recommended by most here as the best tasting gluten-free pasta around.

Post fruity and cocoa pebbles are gluten free, but junky.

Hot dogs and beans *Bush's are gluten-free*, in a thermos. Cut up hotdog.

Nachos. Send with tupperware of sides including lettuce, tomato, sour cream, salsa and shredded cheese.

Lunch meat roll-ups. Put mayo, lettuce, cheese, s&p on them and roll up.

jenvan Collaborator
jenvan
Posted

Also ck out this recent thread. It was on lunch ideas for kids too: Open Original Shared Link

Guest Lucy
Guest Lucy
Posted

when you make supper the night before make extra and put it in a really good thermos for the next day at school. You can buy microwave wide mouth thermos' at walmart in the camping section. you pop it in the microwave and it send it to school. Stays hot for 6 hours.

I don't have a kid in school, but my friend does, and that is what she does. I made Kinnikinick chocolate cupcakes for my sons birthday and no one said they tasted any different. Some even came for seconds. I thought they tasted quite good.

I buy all my groceries at the local supermarket. They have a great selection of things. Depending on your location you may be able to also.

I have heard great things about Manna from Anna as a bread too.

ILOVEOMC Enthusiast
ILOVEOMC
Posted

:D Hi,

My son is 12 and he likes this in his lunch:

Hormel pepperoni

Little containers of Mott's natural applesauce

Enviro Kids Crispy Rice bars

Blueberries

Nuts of various types peanuts and cashews

raisins

Nabisco Fruit chews are made by Kraft and I believe are gluten-free

Instant Jello Pudding (made at home and put in a little container

P.S. Kinnickinnick Pancake and Waffle Mix is good for breakfasts, we just tried it for the first time this week and the whole family loves it.

AmandaD Community Regular
AmandaD
Posted

Hi Lisa - I'm new to this board with 3 little ones. I was just diagnosed myself. Considering having the kids tested...can I ask if yours were symptomatic? Or did you have the test done because you came up celiac?

Many thanks - AmandaD

I as well have been  told I have it.  The day before my 33rd birthday...guess no cake for me as I don't even know where to begin making a gluten free one.

Can you all give me an idea what I could do for school lunches so he doesn't feel "out of place" with his friends.  We are both trying to do a lot of reading so he doesn't feel out of the loop on learning about himself.

My 15 month has it too, she will be easier because she can just eat what I do an no one to rib her.

I'm trying to read all I can, but I would love some good ideas.  Thanks in advance!!

Lisa

Momma to

Jesse 14

R.J. 12

Jacob 11

Joani 15 months

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Ruth Enthusiast
Ruth
Posted

Hi Lisa,

It looks like you have a lot of great lunch ideas... my kids also like:

Food for Life Brown Rice Bread (best for sandwiches) with jelly (allergic to peanuts)

Laughing Cow Soft cheese wedges with Mission brand soft corn tortillas.

Hunt's snack pack puddings, Balance Bars (plain chocolate, not crunch), Smartfood, yoplait yogurt.

Also, a tip that might help if your son's class is constantly having b-day parties or parents who send in snacks: We keep gluten-free cupcakes frozen in the nurse's office freezer. The kids have the freedom to go get one whenever they cannot eat the treat being offered (at least once a week!). We use Danielle's Chocolate Cake mix for the cupcakes with Duncan Hines homestyle frosting.

Also, we LOVE The Gluten Free Pantry's Brownine mix! Easy to make, always taste great... make yourself a belated b-day treat!

My kids also keep a bag of non-perishable snacks in the classroom/locker for times when treats are brought into school.

Hope this helps,

Ruth

  • 2 weeks later...
sashabetty Explorer
sashabetty
Posted

Lisa,

Happy Birthday! And it will get easier, I promise.

If you have a Trader Joe's or Whole Foods, get their gluten-free lists online or at the store and get shopping.

If you have Whole Foods, ask if they have the Dowd and Rogers Chocolate cake mix, vanilla is OK, but chocolate is best. My sisters and nieces and nephews are not gluten-free and they looove it! It scored best natural food chocolate cake mix in Organic Style, and that wasn't even a contest limited to gluten-free products. Don't get Lemon, it's like window cleaner.

or try the Bob's Red Mill gluten-free Brownie Mix, it's pretty good in a pinch.

Our favorite lunch foods:

Arrowhead mills Pizza crust

gluten-free tortillas for tacos

I make a dark pumpernickel style bread with dried cherries that my kids love, ask me and I will send the recipe. Great for turkey sandwiches.

Check out Living Without Magazine, their website is Open Original Shared Link, and they has a recent issue with a flatbread that made good rollup sandwiches.

Wellshire Kids chicken nuggets (a little spicy for my kids but tasty.)

Amy's Rice Mac & Cheese frozen dinner.

Thai Kitchen makes some just-add-hot-water noodle meals that are gluten-free, Thai Peanut is our fave.

We also make sandwiches out of one of the frozen gluten-free waffle brands (Trader joes and I think Van's or Lifestream?)

Applegate Farms or Wellshire Farms lunchmeats should disclose gluten ingredients, sometimes we just roll lunch meat around a piece of string cheese and call that a rollup.

Add some Edwards & sons rice crackers.

Make a quick bean dip/layered dip with some Trader Joe's Corn Chips.

Betty

Kingschild Newbie
Kingschild
Posted

Thank you all so much for the wonderful information. :) I've got so many ideas now that I don't feel quite so overwhelmed.

Today, I'm going shopping for some gluten-free food. FINALLY, there will be a nice selection of safe food for my daughter to eat.

Blessings!

Mysti

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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