Jump to content
  • Sign Up

Do I Have To Eat Gluten To Be Diagnosed For Dermatitis Herpetiformis?

Rate this topic

Recommended Posts

New here, have been suffering from a symmetrical, intensely itchy rash for 3 months. Family doctor thought at first it was contact dermatitis and prescribed multiple antihistamines and topicals. Nothing helped.

She has no idea what the rash is and referred me to a dermatologist (2 month wait). In the meantime, I stopped all gluten for 10 days and went in for a follow up. The rash was much improved. She did a gluten antibody test and it was negative - but was this result valid after no gluten for 10 days?

I stayed gluten free for 5 weeks and noticed more improvement in the rash and felt generally much better - no stomach cramping, diarrhea, or fatigue, all of which have been bothering me for the last 5 years. Now, at 2 weeks prior to the dermatologist appointment, I re-started gluten, at the doctor's suggestion. And I feel horrible after only 4 days of eating gluten! Rash is worse again, diarrhea, fatigue, etc.

Can I stop the gluten again before the dermatologist appointment? I am wondering if it is worth getting a positive diagnosis if I have to feel this bad!

Share this post

Link to post
Share on other sites

Technically, the iga antibodies are still in your skin if you have a rash. But they do start to fall when you stop eating gluten.

In the UK they say you must eat gluten. Here, I don't see it.

My personal experience was the antibodies fell quickly, based on tgecrash I had about 5 mOnths gluten-free. It was much much less severe.

So, no one really knows on an individual basis. Yours could fall fast, or not.

It's your call.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now