Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Importance Of Vitamins


JustNana

Recommended Posts

JustNana Apprentice

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustNana Apprentice

Ugh

Sorry for all the typos guys. I am posting on an iPhone with a dubious autocorrect feature and my fingers are clumsy.

And I'm OLD! LOL

Bubba's Mom Enthusiast

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

It sounds like you have villi damage with those deficiencies? It will take a while to heal to the point that you can absorb these vitamins/minerals from your diet alone.

Supplements are a good idea. Be sure to read the ingredients to avoid gluten. A good multivitamin, probiotics, D3, fish oil, and a B complex. A calcium with magnesium and zinc would be good too?

Honestly, the supplements I take are keeping me functional. I just don't absorb what I need from my foods, and even with them, my numbers are low in some of them.

lesliev523 Rookie

I recently found out I was vitamin deficient, and I am currently waiting for my celiac panel to come back. I have had stomach issues for years, but over the last year I was extremely fatigued, joint pain, chronic colds and sinus infections, fevers, and I was emotionally all over the place.

I have been on supplements for about three weeks and am marginally improving. I actually hoping for a positive celiac test because I am anxious to go gluten free. I really think that will help with a lot of my other issues. I tried gluten free a few months ago, loved the way I felt... but then life got in the way and I started to cheat. I kept telling myself that I really didn't HAVE to be gluten free. But the more gluten I ate the worse I have felt.

Anyway... that is my experience so far with vitamin deficiency. :)

pricklypear1971 Community Regular

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

Yes, it can take a long while to correct the deficiencies.

I'm 9 months gluten-free and last labs showed they are going up but not where they need to be. It takes time.

JustNana Apprentice

Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

Bubba's Mom Enthusiast

Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Silencio Enthusiast

Do you guys have problems with your teeth shifting? I thought it was a problem with low vitamins but I had my vitamin levels checked and I havent heard back from the doc.

JustNana Apprentice

Bubba's Mom

It's funny you suggested the fish oil. I have been craving sardines for a while now. My favorite Tiny Tots brand is a little pricey so I will certainly look into the fish oil supplement. I will still splurge on the sardines once a week! Luckily my husband loves them too so the temporary cat food breath isn't so offensive. :-)

Thanks for your suggestion. And for many other great posts of yours I have read.

Metoo Enthusiast

I am struggling with a Vitamin D deficiency. This is going on year 2 of my struggle with it. I was first at only a level of 14, my doctor had me taking 10kIUs a day, I got back up to 55, and then 5,000IUs as my maintenance dose, but my level started dropping and by this winter I was back down to 23. They don't seem as concerned this time, but I am aware now that my fatique is a direct correlation to my vitamin D levels. I am taking 4,000IUs now a day and feeling much better.

i have never been specifically checked for B12, but I have started to wonder if it is low and started supplmenting. I also had my thyroid tested but everything checked out.

birdie22 Enthusiast

I take B12 sublingual, D3, and Magnesium. For those taking cal-mag, my doc strongly advised me to not take them together. There's conflicting info on the web but the conventional wisdom says that the calcium blocks the magnesium absorption. I started with a cal-mag supplement and was still having issues. Once I switched to mag only I saw improvement.

JustNana Apprentice

Metoo,

Wow! Your levels have been worse than mine. Mine was 19 six weeks ago. I am taking 5,000 units a day. It's good to know that the symptoms are so strongly correlated to the D levels. Keep me posted. I'd love to hear how you are doing. I am getting B12 shots once a month and taking 2500 sublingual a day. The symptoms of low B12 are many and varied. Chronic deficiency can lead to mental issues, nerve damage, fatigue and weakness, pernicious anemia, etc. One good thing is B12 supplements are not expensive, the sublinguals taste good and you can start taking them without a diagnosis as they are a water soluable non toxic vitamin. I say go for it!

JustNana Apprentice

Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

Luddie Newbie

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

If you get fish oil, make sure you get the triple strength otherwise you are really getting more omega 6s than you want to. We get enough of that in our regular diets, and we're usually short on the omega 3s. Triple strength is a better balance. Also, flax seed oil used to be considered a good source of omega 3s, but my doctor says current evidence has shown that humans do not metabolize it the same way as the lab rats studied do. So, he recommends either fish oil or algae oil, if your a vegetarian.

Luddie

birdie22 Enthusiast

Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

My doc suggested 400-500mg of chelated magnesium to help with headaches and an ache in my thighs. While not completely resolved, I did see improvement (less frequent episodes) once I ditched the cal-mag and went straight mag. I take 500mg.

aliceintown Newbie

Aren't vitamin B12, iron and zinc the main deficiencies? Magnesium deficiency is probably an important one to consider too, isn't it?

Glutinator Girl Rookie

Here is a fabulous site about thyroid managemnet

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,692
    • Most Online (within 30 mins)
      7,748

    Linda M Rush
    Newest Member
    Linda M Rush
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.