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The Importance Of Vitamins

JustNana

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JustNana Apprentice
JustNana
Posted

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

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JustNana Apprentice
JustNana
Posted
  • Author

Ugh

Sorry for all the typos guys. I am posting on an iPhone with a dubious autocorrect feature and my fingers are clumsy.

And I'm OLD! LOL

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

It sounds like you have villi damage with those deficiencies? It will take a while to heal to the point that you can absorb these vitamins/minerals from your diet alone.

Supplements are a good idea. Be sure to read the ingredients to avoid gluten. A good multivitamin, probiotics, D3, fish oil, and a B complex. A calcium with magnesium and zinc would be good too?

Honestly, the supplements I take are keeping me functional. I just don't absorb what I need from my foods, and even with them, my numbers are low in some of them.

lesliev523 Rookie
lesliev523
Posted

I recently found out I was vitamin deficient, and I am currently waiting for my celiac panel to come back. I have had stomach issues for years, but over the last year I was extremely fatigued, joint pain, chronic colds and sinus infections, fevers, and I was emotionally all over the place.

I have been on supplements for about three weeks and am marginally improving. I actually hoping for a positive celiac test because I am anxious to go gluten free. I really think that will help with a lot of my other issues. I tried gluten free a few months ago, loved the way I felt... but then life got in the way and I started to cheat. I kept telling myself that I really didn't HAVE to be gluten free. But the more gluten I ate the worse I have felt.

Anyway... that is my experience so far with vitamin deficiency. :)

pricklypear1971 Community Regular
pricklypear1971
Posted

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

Yes, it can take a long while to correct the deficiencies.

I'm 9 months gluten-free and last labs showed they are going up but not where they need to be. It takes time.

JustNana Apprentice
JustNana
Posted
  • Author

Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

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Silencio Enthusiast
Silencio
Posted

Do you guys have problems with your teeth shifting? I thought it was a problem with low vitamins but I had my vitamin levels checked and I havent heard back from the doc.

JustNana Apprentice
JustNana
Posted
  • Author

Bubba's Mom

It's funny you suggested the fish oil. I have been craving sardines for a while now. My favorite Tiny Tots brand is a little pricey so I will certainly look into the fish oil supplement. I will still splurge on the sardines once a week! Luckily my husband loves them too so the temporary cat food breath isn't so offensive. :-)

Thanks for your suggestion. And for many other great posts of yours I have read.

Metoo Enthusiast
Metoo
Posted

I am struggling with a Vitamin D deficiency. This is going on year 2 of my struggle with it. I was first at only a level of 14, my doctor had me taking 10kIUs a day, I got back up to 55, and then 5,000IUs as my maintenance dose, but my level started dropping and by this winter I was back down to 23. They don't seem as concerned this time, but I am aware now that my fatique is a direct correlation to my vitamin D levels. I am taking 4,000IUs now a day and feeling much better.

i have never been specifically checked for B12, but I have started to wonder if it is low and started supplmenting. I also had my thyroid tested but everything checked out.

birdie22 Enthusiast
birdie22
Posted

I take B12 sublingual, D3, and Magnesium. For those taking cal-mag, my doc strongly advised me to not take them together. There's conflicting info on the web but the conventional wisdom says that the calcium blocks the magnesium absorption. I started with a cal-mag supplement and was still having issues. Once I switched to mag only I saw improvement.

JustNana Apprentice
JustNana
Posted
  • Author

Metoo,

Wow! Your levels have been worse than mine. Mine was 19 six weeks ago. I am taking 5,000 units a day. It's good to know that the symptoms are so strongly correlated to the D levels. Keep me posted. I'd love to hear how you are doing. I am getting B12 shots once a month and taking 2500 sublingual a day. The symptoms of low B12 are many and varied. Chronic deficiency can lead to mental issues, nerve damage, fatigue and weakness, pernicious anemia, etc. One good thing is B12 supplements are not expensive, the sublinguals taste good and you can start taking them without a diagnosis as they are a water soluable non toxic vitamin. I say go for it!

JustNana Apprentice
JustNana
Posted
  • Author

Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

Luddie Newbie
Luddie
Posted

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

If you get fish oil, make sure you get the triple strength otherwise you are really getting more omega 6s than you want to. We get enough of that in our regular diets, and we're usually short on the omega 3s. Triple strength is a better balance. Also, flax seed oil used to be considered a good source of omega 3s, but my doctor says current evidence has shown that humans do not metabolize it the same way as the lab rats studied do. So, he recommends either fish oil or algae oil, if your a vegetarian.

Luddie

birdie22 Enthusiast
birdie22
Posted

Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

My doc suggested 400-500mg of chelated magnesium to help with headaches and an ache in my thighs. While not completely resolved, I did see improvement (less frequent episodes) once I ditched the cal-mag and went straight mag. I take 500mg.

aliceintown Newbie
aliceintown
Posted

Aren't vitamin B12, iron and zinc the main deficiencies? Magnesium deficiency is probably an important one to consider too, isn't it?

Glutinator Girl Rookie
Glutinator Girl
Posted

Here is a fabulous site about thyroid managemnet

Open Original Shared Link

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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