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New To The Forum But Not To Celiac

lovetapioca

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lovetapioca Rookie
lovetapioca
Posted

I am new to the forum but have been reading info from Celiac.com for quite some time and it has really helped me. I have been gluten-free for 2 years now and also have MS. Getting diagnosed with Celiac was one of the best things that has ever happened to me since now I have my life back and continue to feel better all the time...unless I have made errors and that is where this forum comes in. I need to continue learning so I will not accidentally make an error...especially at the wrong time. We all know about that.

Now, for the tech question. Is there an easy place to search for a topic, especially in depth? I must have missed this on the site. I have limited time, as most do, and cannot simply read thru everything. So, any tips would be appreciated. I made a few posts...but am not sure where to check my posts to see who answered without going thru the different forums and searching for my post. There has to be a way to mark my posts to save time.

Sorry for my ignorance and I appreciate everyone's help in advance.

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mushroom Proficient
mushroom
Posted

There are lots of ways to use this forum, but here are a couple which might be of use to you. In the upper righthand corner of the page once you have logged on you will find a box with your user name. Click on the box and it will give you a pulldown menu. Click on My Profile, and in the box that comes up, besides a lot of interesting information, you will see in the line across the top of the box, several clickable buttons. By clicking on Topics you can find the latest topics you have started; by clicking on Posts you can find the latest posts you have made. Down the lefthand side of this page you will find My Content. Click on this and you willl find every thread in which you have made a post (for the last 12 months I believe).

Another way to identify threads that you are posting in is to click (on the index page) on View New Content. This will bring up all posts made by all posters in the last 24 hours (or since you last logged on). There are various colours in the boxes next to these posts and some (if you look closely enough) will have a diagonal bar through the lower righthand corner which, on closer examination is revealed to be a pencil, meaning that that is a athread which you have made a post in.

If you want to find all posts made in the last 24 hours, go to the forum index page and the line across the bottom has a button, Today's Active Content, which willl give you all posts made in the last 24 hours regardless of whether you have logged on or not. There are other ways of following threads on the forum, but as a moderator I do not use them. Someone else may explain them for you.

lovetapioca Rookie
lovetapioca
Posted
  • Author

Thank you! I will check out your suggestions.

IrishHeart Veteran
IrishHeart
Posted

In addition to Shroomie's suggestions, a quick way to search the forum is --can you see up in the right hand corner, under the CELIAC.COM BLUE Banner and your profile, there is a

SEARCH FORUM VIA GOOGLE.

Type in the topic you are looking for and related threads will appear in a new screen.

Hope this helps!

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
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