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Sandpaper?


JaneWhoLovesRain

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JaneWhoLovesRain Enthusiast

Does anyone find that their rash feels like sandpaper, very rough? As I run my hand over my lower back it reminds me so much of sandpaper. Maybe it is because these tiny little blister things have popped and now have scabs on them and that is creating a rough feeling. Sorry, that sounds kind of yukky!! My other rashy area don't feel quite that bad.

Overall my rash seems to be much better. I am still itching but it is definitely clearing up and my back doesn't feel as much like sandpaper as it did last week. Last Tuesday I started taking claratin twice a day at the direction of the nurse practitioner and after about 4 days I noticed a big difference. Then I stopped the claritin. Yesterday or Monday I started itching again but no new breakouts. Don't know if its related to the claratin or not or if it is because I ate a mini-oreo over the weekend as a test.

Still don't know what I have. I had a biopsy last week and will get results next week.


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pricklypear1971 Community Regular

Yes, I know the sandpaper feeling. I had it in my pits!

Keep the scabs moisturized. I used Vanicream and petroleum jelly, at times. Several times a day.

My derm had me on steroids and antihistimines. Steroids helped - shots didn't do a thing but prednisone knocked it out (also made me nuts, along with the shots). After the pred he put me on a class 1 and 2 antihistimine that seemed to help tamp it down, as well as using a steroid cream. The combo kept it from covering my whole body again, but I never healed on it until I went gluten-free.

I have noticed, now that I'm gluten-free, that antihistimines work well for my seasonal allergies - whereas they didn't before. Plus, they seem to dampen an ai attack. My ND told me that's because they are immune suppressants.

squirmingitch Veteran

Yep, the sandpaper feeling. Had it all around my neck. Now it's my back. Prickly's miracle cure --- Vanicream. They get to that stage where there's the tiny dot of scab or whatever & your clothing rubs against it & it's irritating as heck. Vanicream does the job.

I was wondering about you today Jane. Wondering when you will get your biopsy results back.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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