Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elavated Alkaline Phostaphase Levels


leudy

Recommended Posts

leudy Rookie

I keep having elevated levels on alkaline phostaphase on my blood work. I also have hashimotos thyroiditis and am suspisous of gluten intolerance. After i consume large amount of gluten I get terrible gas and bloating and my throat and esophagas swell.

Can anyone give me some insight about the blood levels and other problems. How soon after ingesting gluten do most symptoms start? Thanks for any input!

Lisa :(:(:(:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skoki-mom Explorer

You really need to talk to a doctor about your labs! I don't know details about your health issues, but I can tell you one thing. An elevated alk phos is caused when your body is leaching calcium from your bones, which happens when you either don't have enough calcium intake, or for some reason you are not absorbing the calcium you intake. Over the course of time this leads to brittle bones and risk of fractures. Yes, this is a risk of celiac disease! This is one of the main reasons I am treating myself even though I am asymptomatic (I have subclinical celiac disease), I don't want osteo when I'm old! Hope that helps some.

leudy Rookie
You really need to talk to a doctor about your labs!  I don't know details about your health issues, but I can tell you one thing.  An elevated alk phos is caused when your body is leaching calcium from your bones, which happens when you either don't have enough calcium intake, or for some reason you are not absorbing the calcium you intake.  Over the course of time this leads to brittle bones and risk of fractures.  Yes, this is a risk of celiac disease!  This is one of the main reasons I am treating myself even though I am asymptomatic (I have subclinical celiac disease), I don't want osteo when I'm old!  Hope that helps some.

<{POST_SNAPBACK}>

Thanks for your reply! I am seeing a gastro dr . on Tuesday. Just curious what do you mean by subclinical celiac disease and what are your symptpms?

I don't want osteo when I am old either but my doctor doesn't seeem really concerned. My levels range from 170-200 and normal is around 135. This just showed up about 18 months or so.

skoki-mom Explorer
Thanks for your reply!  I am seeing a gastro dr . on Tuesday.  Just curious what  do you mean by subclinical  celiac disease and what are your symptpms?

I don't want osteo when I am old either but my doctor doesn't seeem really concerned.  My levels range from 170-200 and normal is around 135.  This just showed up about 18 months or so.

<{POST_SNAPBACK}>

Woops. sorry, I slipped into nurse-speak, lol!! Subclinical means I have no clinical features of celiac disease, as in I can eat anything I want, never get cramps, never have diarrhea, I do occasionally feel bloated/gassy but so does pretty well everyone once in a while. I got screened because my sister was diagnosed last winter, never in a million years thought it would come back positive. I'm lucky because I'm not anemic, my bone density scan is normal, etc. I look and feel like a very healthy person. However, the anti-endomesial antibody screen came back strongly positive and my scope was also positive. Haven't heard the microscopic yet but I have no doubt it will just confirm what my GI told me as soon as the scope was done, that I do in fact have celiac disease. Odd how some people like me are totally asymptomatic/subclinical yet have positive screens/scopes and other people seem to have a range of symptoms yet still have inconclusive lab tests. Anyhow, the gluten-free diet right now has nothing to do with alleviating symptoms, but it has everything to do with preserving (hopefully) my health for the future.

Good luck at your appt on Tuesday, hope you can get some answers!

cdford Contributor

This has been one of the last things to stabilize for me. The osteopenia took well over a year to begin stop going in the wrong direction. Now I am seeing the numbers slowly get better, just in teeny tiny steps. My alkaline phtase numbers have been even slower to change, but are finally moving in the correct direction.

leudy Rookie
This has been one of the last things to stabilize for me. The osteopenia took well over a year to begin stop going in the wrong direction. Now I am seeing the numbers slowly get better, just in teeny tiny steps. My alkaline phtase numbers have been even slower to change, but are finally moving in the correct direction.

<{POST_SNAPBACK}>

thanks for your reply. I am in north georgia, which doctor do you see? I am also hypo with hasimotos thyroiditis. other than my thyroid the alk phos levels are the only thing that showed up. did you have other bloodwork that was abnormal? How did you finally figure out the problem. and if you don't mind telling me some of your symptoms. Do you have food allergies as well?

Sorry to ask soooo much but I am desperate for answers and I seem to have major problems after I eat gluten and peanuts. I am currentlyon steriods to reduce the swelling in my throat after eaten and huge amount of homemade eggrolls( gluten in the wrapper) for several days.

cdford Contributor

Sorry it took me so long to get back to you. Life has been a little hectic this week.

I began with extreme fatigue and memory loss. Looking back, I had female problems for years that we did not realize were associated with celiac disease. Later came the IBS symptoms, headaches, and neurological problems. I don't remember what triggered the osteo check but it may have been a round of extended v and d. Extended meaning months.

Yes, I do have other food allergies, but they are diminishing with time. A page long list is now down to just a couple outside the usual celiac disease ones. The neurological symptoms and the FMS ones are mediating as well. I am doing so well this summer that I sure hope I don't swing back negatively over the winter. I could live like this after the problems I have had for the last ten years.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.