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KNG

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KNG Newbie

Hi everyone,

My name is Katie. I'm 21 and I found out a few days ago that I am gluten intolerant (I did the enterolab test). I'm not really sure what compelled me to take it. Just a feeling, I guess. I mean, I've always felt a little bloated but I have never had extreme symptoms like a lot of other people.

Anyway, going gluten-free is going to be a big challenge for me. I like to eat out a lot and now I can't have my favorite foods, which sucks. Especially since I know my friends will continue to go to these places without me. They don't understand that I can't eat gluten anymore, even though I always have. It's getting annoying. It's not like this is some diet fad I'm doing or whatever.

I guess my biggest challenge will be figuring out what to eat. I tried some glutino (I think) bread and wow...it's pretty terrible. So dry and almost stale tasting!

Anyway, I look forward to meeting you all, and learning from you!

Katie :)


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mushroom Proficient

Hi Katie, and welcome to the board.

Yes, probably the biggest challenge a person who is gluten intolerant faces is not the obvious one of eating gluten free, but in dealing with the reactions from friends and family to your gluten free status :rolleyes: We have all walked that particular parth, and sometimes it can seem like you are walking a tightrope. They have all seen you hoeing into gluten goodies previously, so what has changed? Well, what has changed is your body's reaction to gluten, which has been progressively becoming more unpleasant to the point that you investigated why, and you have now found out that the reaction is a harmful one which coujld lead to more serious problems in the future if you continue to eat it, so therefore you must eliminate it - all of it!! That is really all the explanation that is needed, and you do not have to make excuses. And yes, they will probably go to those places without you :( but if you handle it well and they are 'good' friends they should start to be respectful of your needs too and let you choose a place where you will feel safe eating.

Evenutally you will learn how to make substitutes for practically every goody that you are having to give up (although good bread is a problem - have you tried Udi's or Rudi's?? they make good sandwick style bread (often you will find it in the freezer section, sometimes fresh). We have a wonderful recipe section on the forum where you can find how to make practically anything you are used to (and lots of things you are not yet used to). But eating out is always going to be a bit problematic, particularly at your stage of life where hanging out with friends at fast food restaurants is so BIG!

One necessity of getting by is to always have food with you - in your purse, in your car, have a stash of food readily available so that if you find yourself in a situation where there is nothing you can eat you will not have to starve while watching everyone else eat. Things like nuts, trail mix, Lara and Kind bars, dried fruits will stand you in good stead. Another coping mechanism when you know you will be going to some place where you can't eat is to eat before you go and then just buy a drink (or if it is safe, some french fries). Taking a dinner plate of food with you to a meal at the home of friends and family is perfectly acceptable and less stressful than eating food cooked by someone who doesn't 'quite' understand gluten free and cross-contamination - which is probably the riskiest eating.

Anyway, again welcome and settle in and take a look around. This place is packed with useful information and friendly people who will give you a helping hand. :)

Marilyn R Community Regular

I welcome you to, Katie!

Forum members/moderators are going to start wondering if I'm working for Against The Grain. Their bagels and pizza are so good! It may just be my older oven, but I bake the pizza for about 5 minutes longer than it says to, and let it rest for a few minutes before slicing. I don't feel like I'm missing out on anything when I have that product. And the bread you have may be good toasted. (Toaster not grilled.) You can still have BLT's!.

  • 1 month later...
JonsLoveBugg Newbie

Hi Katie-

I know at first it's pretty depressing and you feel like your never going to be able to eat good foods ever again but that's not the case!

I have bought enzymes that are supposed to help me digest gluten but I'm honestly terrified to take them! And I alway tell my hubby (who is constantly trying to get me to take them to just try!) but I always say once I think of a food that I loved being gluten filled that I ant get gluten free then I'll take them for that. (because being sick for a week isn't worth some mediocre gluten filled snack! ) but to be honest there is no food that is gluten filled that I can't get gluten free that is just as good!

As far as bread goes, yeah that sucks... But I've found that Schar makes the best bread closest to gluten filled. And no it's not frozen! If you have a wegmans grocery store try there or go on glutenfreely.com or even amazon and you can order it! It's the best. And against the grain ANYTHING is amazing!!!!!!! There rolls taste like donuts if you just microwave them and add butter! Why would I eat gluten with those?!?!

Good luck!

Natalie

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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