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Isolated Rashes? [Images Included]


padua330

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padua330 Newbie

Hey all, I made a post about 2 weeks ago about some GI issues and I still haven't had the time to schedule a 1 year wellness checkup, but lately I've had no appetite and now I've got a rash on my wrist, arm and thigh. Could this be a gluten-related symptom? I seem to be in a funk lately and haven't been feeling all that great.

http://i40.tinypic.com/2929mk6.webp

http://i40.tinypic.com/25zgv3b.webp


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padua330 Newbie

Sorry, I forgot to mention I'm 20 years old and that my dad developed an auto-immune problem around the same age (thyroid issue). I also have a pretty stressful life at the moment.

mushroom Proficient

Something else to bring up to that brand new internist you are going to go see in May :) Check with your local Celiac Society for recommendations of a celiac savvy doctor in your area. It is important to have a doc. that is familiar with celiac disease, because so many are not and they screw you around for years before you finally diagnose yourself in frustration :ph34r:

Hard to tell but those pics sure could be DH. You can get a biopsy TO THE SKIN IMMEDIATELY ADJACENT TO THE LESION, NOT ON THE LESION ITSELF, to check for Dermatitis Herpetiformis. But the doctor has to specify that this is what testing should be applied to the biopsy (it has to be specially stained) and not biopsy the lesion itself -- the IgA antibodies will be found in the skin right next to the lesion.

padua330 Newbie

Thanks for the reply! :)

Though I've absolutely hated these rashes over the past few days, I am kind of happy to have something my doctor can see that may indicate something may not be right rather than me going in with a bunch of complaints. I'm always shy at the doctors office for some reason.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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