Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ttc

horsemom

By horsemom
in Related Issues & Disorders

Recommended Posts

horsemom Newbie
horsemom
Posted

Hi

Im new here and so glad to have found this forum.

I have been ttc for 2plus years and have just done 6mths of fertility treatments with no results.

I have slightly low FSH but am pretty much considered unexplained fertility.

My mother has suggested I try a blood test for Celiac. My grandfather has it and my mother is Gluten Intolerant.

Tomorrow I go for that blood test. Regardless of the result, I am going to go Gluten free.

I have been researching this more and more and it makes so much sense. Im a health nut so it doesn't phase me to eat gluten-free.

Has anyone had a gluten issue linked to fertility troubles.

I have severe period pains, numbness and tingling down my neck and arms sometimes.

That is about my only real symptoms. I do not fit the profile of a celiac but you never know.

I do have severe seasonal allergies so am interested to see if they subside by going gluten free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


upwitht21 Rookie
upwitht21
Posted

We did 10 cycles of fertility meds....diagnosed with celiacs in November and accidently got pregnant in January (didn't stick). Can I say without a doubt celiacs caused fertility issues...no but seems like it affected something

Good luck

raea2002 Apprentice
raea2002
Posted

I don't know but wishing you luck.

JNBunnie1 Community Regular
JNBunnie1
Posted

Hi

Im new here and so glad to have found this forum.

I have been ttc for 2plus years and have just done 6mths of fertility treatments with no results.

I have slightly low FSH but am pretty much considered unexplained fertility.

My mother has suggested I try a blood test for Celiac. My grandfather has it and my mother is Gluten Intolerant.

Tomorrow I go for that blood test. Regardless of the result, I am going to go Gluten free.

I have been researching this more and more and it makes so much sense. Im a health nut so it doesn't phase me to eat gluten-free.

Has anyone had a gluten issue linked to fertility troubles.

I have severe period pains, numbness and tingling down my neck and arms sometimes.

That is about my only real symptoms. I do not fit the profile of a celiac but you never know.

I do have severe seasonal allergies so am interested to see if they subside by going gluten free.

Everyone fits the profile of a Celiac. You don't even have to have symptoms to have Celiac. The numbness, tingling, and problem periods are frequent complaints of Celiac.

I personally have seen a dramatic reduction in seasonal allergies since going gluten free, and I do know that a good number of people have seen success in conceiving when they were previously unable to, after gluten free. Here's hoping, right? :)

jigsawfallingintoplace Newbie
jigsawfallingintoplace
Posted

hello and welcome :) :)

I had an ectopic and a miscarriage - both took a long time to concieve.

Followed by 2 plus years of unexplained infertility, very painful and highly irregular periods (one every 45-60 days)

Had 6 months of clomid - no success.

At 40 got to top of ivf list but decided not to go through with it and be childfree by cholce (it has been a long and tearful journey over 10 years and we had had enough)

I am self diagnosed celiac at 42 and since going gluten free all symptoms have gone - i had the tingling and numbness you describe too.

My periods have returned to every 28 days - the first time in 20 years!

I may have felt differently if I was younger but now I have come to terms with being childfree through choice but I do strongly believe that celiac was the cause of my losses and UI and I am sad that it was never investigated.

There is a call that all unexplained Infertility patients are automatically tested for celiac (oxford medical journal) but as yet, i am sure many ladies are celiac and dont know that this is the cause.

Good Luck and like someone else said , there are many successful stories of motherhood after going gluten-free!

addis001 Apprentice
addis001
Posted

i had my first son fine (concieved on first try), but looking back I was on a diet of fish, vegetables, fruits, chicken, etc.. because my parents eat super healthy, and I was back with them until husband could find a job when school was over.

I had weird pains etc while preggo.. Then after I had him, I had SEVERE fatigue, and other symptoms. Then about at 8 months old, I was vomitting, pain, diarreah, unexplained other things just once in awhile.. So when he is 20 months old, we were TTC and my symptoms were getting worse, to the point of everyother day. It was hard getting preggo.. No positives at all..Periods were short and sporadic.. it was bad.. So I went to doctor after doctor..

My grandmother has celiac, my aunt has celiac, my other aunt is gluten sensitive, My mom is sensitive.. So I decided after 1000 dollars in medical procedures to go gluten free... A Month after going gluten free, we got pregnant.. I'm at 15 weeks now and going strong..

If you've had strong symptoms for 2 plus years you might have more damage than me.. and you might want to wait a few more months before TTC.. I've heard of others that have a ton of damage they tend to miscarry more because their body is still repairing itself.. and when your preggo your immune system is suppressed so your body will accept the fetus..It can't do that and repair at the same time sometimes... Just a thought but its up to you..

  • 3 weeks later...
deb445 Rookie
deb445
Posted

Horsemom

Welcome to the forum, and I am hopeful for you ...

In hindsight, after trying to start our family for years, and suffering loss (ectopic pregnancy)...I finally got pregnant again when I was on vacation, eating fresh veggies, fruit and lots of fish. I carried my little gluten sensitive guy to term. :D

Since being glutenfree, my cycles have been significantly less painful. Recently, cutting out corn (coincidence? too soon to tell) I was completely painfree, and no bloating/inflammation.

I think there is a connection...good luck to you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
holland Newbie
holland
Posted

Yes, I have [had] fertility problems because of it..

We saw an 'expert' but they couldn't figure out what was going on.. we don't want to do the IVF because to us, if it's meant to be, it'll happen...

I've lost one officially (meaning I had a positive on the test) and I know I lost at least 3 others (unofficially - no positive; but I just knew I was) and during all those times (over 19 years) I was gluten intolerant and I didn't even know it. I just recently (2 years ago; with my last pregnancy - the one I had the positive) I found out that I am... and yes, it can cause problems getting pregnant and even staying pregnant.

Even before they found out what the problem was, they took out my gallbladder.. that helped some (it was problematic), but with me, the damage is/was pretty bad.. :(

Just recently (2 months) have been completely gluten free. When I was told, I wasn't sure where to turn... at the time, I was a junk food-aholic! I had to have me those brownies!!... cakes, crap like that; basically, just that, crap. Things women love during those hormone peaks.. you know... my chocolate!! anyway... lol...

during those times, I would feel like crap.. wore down, wore out and put away wet type of thing...

so my doctor told me "stop the gluten.. and after a bit, maybe months, maybe it'll happen.. if the damage isn't too great" so I've been off gluten for 2 months.. still going strong (even though I sometimes miss what my husband eats (bastard! lol) ice cream, cake.. (my sons birthday was recently so...) but anyway, I'm taking my vitamins (folic acid, iron..etc) just in case I do end up pregnant.. and other vitamins from the foods I can't eat...

I haven't eaten Gluten for these 2 months, I feel sooooo much better... and just the other night, I took a drink of something that had malt in it and immediately, even before I found out it did, my mouth was like "GROSS!".. and then I got sick... so I think my body is trying to tell me "thank you so much for keeping me clean.. I don't need that crap!"

anyway, good luck! stay Gluten Free... and if it's meant to be, it'll happen! :)

  • 3 weeks later...
pinkscooby6 Rookie
pinkscooby6
Posted

So, I have been having the same issues. My husband and I started trying to conceive in December 2011, we were successful the first month, but then miscarried at 5.5 weeks, heart broken. Haven't been able to conceive since. Now I haven't had a cycle for 52 days, but the urine tests are saying negative! All of my vitamin levels are normal, so I don't know why I am late. Have any of you had this happen?

  • 3 weeks later...
upwitht21 Rookie
upwitht21
Posted

I wanted to update my previous comment to state it absolutely causes fertility problems.....

We did 10 cycles of fertility meds with zero success. When I got diagnosed and went gluten free I got pregnant the first month we tried literally "trying" once (hubby had just had back surgery) we miscarried at 9 weeks in march.

I just found out I am pregnant again (wow that sounds crazy seeing it out loud).... Absolutely without a doubt gluten caused the problem.

Pinkscooby6, how long have you been gluten free? I have long cycles and the endocrinologist I used to see recommends doing a month of birth control and 3 months off. Its suppose to help regulate your cycles.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    yfuvhg
    Newest Member
    yfuvhg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.