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My Doctor Has My Results

Mnicole1981

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Mnicole1981 Enthusiast
Mnicole1981
Posted

But I have to wait for her call to tell me. Will update as soon as I get the info.

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Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

She said that my lab work was normal.

saintmaybe Collaborator
saintmaybe
Posted

She said that my lab work was normal.

Get copies of all your results. I've many times had things reported as "normal" that were low normal, or even abnormal in the books of other specialists. If they give you a hard time or delay because they "lose" your request, remind them that you are legally entitled to the information. Sometimes threatening legal action is necessary. :angry:

MitziG Enthusiast
MitziG
Posted

Definitely get a copy of your labs. You want to verify which tests they did. Often you don't get exactly what you think you did!

And regardless of the lab tests, if gluten-free makes you feel better, then you have your answer. You don't need a dr to agree with that!

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I had scrambled Eggbeaters and a slice of regular toast and I felt awful after eating it. My arms feel like they are on fire.

saintmaybe Collaborator
saintmaybe
Posted

I had scrambled Eggbeaters and a slice of regular toast and I felt awful after eating it. My arms feel like they are on fire.

Unless you are going in for more testing for celiac, you can eat gluten free. There is a physiologically separate condition called non celiac gluten sensitivity. People with this disorder have the same negative physical reaction to gluten, but often don't have positive antibodies or biopsies. This is because the molecular pathways that control NCGS activate different aspects of the immune system than celiac disease. Nonetheless, the only treatment is to be strictly gluten free, although the outlook is generally much more positive. Stop eating gluten, unless you are getting biopsies taken! I know whereof I speak, because I was just diagnosed by a celiac expert with NCGS.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I have an endoscopy scheduled for Thursday morning. I had night sweats like crazy last night. If it is not Celiac, I really hope to find out soon.

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MitziG Enthusiast
MitziG
Posted

At least that is just a few more days! And you don't have to eat any gluten after Wednesday! :D sounds like you definitely are at least NCGI so regardless of the biopsy, ditch the gluten permanently!

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    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

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