Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed W/ Cd -- Addl Allergy Testing?

Maureen73

Recommended Posts

Maureen73 Apprentice
Maureen73
Posted

Hi all - I've been (finally) diagnosed w/ celiac disease (and ulcerative colitis). I was wondering if anyone who was diagnosed went for additional testing to determine if there were other allergies to foods, etc. as well??? If so, what type of doctor did you see?

I'm trying to research this disease as much as possible and am finding that there are a lot of diseases, etc. "linked" to celiac disease, so I want to make sure that I don't have anything else (please, no allergy to chocolate!!!). :lol:

Thanks,

Maureen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


musikate Apprentice
musikate
Posted

Maureen,

True food allergies manifest with typical symptoms of anaphylaxis, eg, hives, constricted throat, wheezing, etc. You would know if you had them. celiac disease is not a food allergy.

Kate

KaitiUSA Enthusiast
KaitiUSA
Posted

Celiac is NOT an allergy. This is why when you go to an allergist they will not be able to test you for celiac by allergy testing. Celiac has it's own separate panel that needs to be done.

For allergy testing find an allergist to do those kinds of tests. Also, places like York labs do testing. The problem is there are many false positives or false negatives that can come with it. For instance, you could not react to one food it shows you high on but react to one that would not show up. If you have a severe allergy you should know ...I, in addition to celiac, have a severe wheat allergy and my throat starts to close up and I feel like I can't breathe, tingling, itching, etc.

If it's a minor one you would be less likely to recognize it and testing can be beneficial for picking it up.

Nevadan Contributor
Nevadan
Posted

Regarding related diseases, I recommend a bone density test for osteophorosis. This seems to be one of the strongest correlations.

George

Nevadan Contributor
Nevadan
Posted

Regarding related diseases, I recommend a bone density test for osteoporosis. There seems to be very strong correlation with celiac disease. In fact I read that some medical group (AMA?) is now recommending that all patients dx'ed with celiac disease should have the bone density test.

George

Maureen73 Apprentice
Maureen73
Posted
  • Author

Thanks all. My dr did prescribe a Dexa Scan for bone density and prescribed Fosimax for osteoporosis due to the Celiac as well as ulcerative colitis (taking prednisone which can cause bone loss as well).

Maureen73 Apprentice
Maureen73
Posted
  • Author

Kate --

I see you are from Philly. I am moving to South Jersey (Swedesboro area in 2 weeks). Currently in the Princeton area. Do you know of any gluten free restaurants in Philadelphia? I found that PF Changs in Marlton, NJ offers a gluten free menu. Several restaurants in NYC and North Jersey, but I am still searching for some closer to my hometown.

Thanks!

Maureen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748
    WAB19
    Newest Member
    WAB19
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.