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Caligirl04

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Caligirl04 Newbie

Hi-

I was diagnosed with Celiac a little over a month ago. I am on a completely gluten free diet but find that if I eat any starch/carbohydrate at all, I have problems (terrible gas, diarrhea, cramping). This includes any vegetables or fruits. I really only feel okay eating eggs, tuna, and plain chicken. Is this normal after diagnosis and beginning a gluten free diet? Is there anything I can do?

Thanks for any info or advice!

Caligirl04


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Di2011 Enthusiast

I remember in my early days (about 12 months ago) I ate a bowl of rice. Nothing added. I was pretty desperate food wise cause nothing was going down well. I thought plain rice would be okay but it was quite the opposite. After that I stuck with soup/stews with minimal ingredients - started with pumpkin soup (literally pumpkin and water), potato with a little onion/leek. After a week or two I was able to handle adding a little meat. Eventually I moved on up to stew/casserole with more and more ingredients.

It was a very gradual process - probably about four-six months of gradual introductions and trials of new ingredients one at a time but it was working for me so it wasn't hard to do. Given how incredibly hungry I had been it was nice when I found another food that agreed with me. I am now well and truly handling dairy, rice etc etc. Corn (and other sals) was a more recent discovery as something I am intolerant to. Corn takes out much of the gluten free production food which in hindsight has probably been very good for me. And cheaper.

If eggs, tuna and chicken are working for you then eat as much of these as you can handle. Try different cooking techniques - fry, scramble, steam, roast etc so it doesn't get too boring/frustrating. I bet your never had stir fried chicken (and maybe some leek or mild onion? for flavour) in your omelete. Try and think of combinations that would otherwise be considered unusual. Have you tried fresh tuna? Maybe try some of the milder forms of seafoods? I have to watch my iodine intake (due to dermatitis herpetiforms - DH) otherwise I would have been going down the seafood track early on. I'd eat prawns and oyster every day if I could :(

Keep a track (diary if that suits you) of what you eat and what reaction you have. This is sooo important and will shorten your journey.

I wish you well. Let us know how you are travelling along the way.

HoosierMother Newbie

I wish you well in discovering foods that you can eat...

Bubba's Mom Enthusiast

Hi-

I was diagnosed with Celiac a little over a month ago. I am on a completely gluten free diet but find that if I eat any starch/carbohydrate at all, I have problems (terrible gas, diarrhea, cramping). This includes any vegetables or fruits. I really only feel okay eating eggs, tuna, and plain chicken. Is this normal after diagnosis and beginning a gluten free diet? Is there anything I can do?

Thanks for any info or advice!

Caligirl04

Try taking a digestive enzyme when you eat. The starches can be hard to digest when you have damage from Celiac. Most of us find that taking probiotics is very helpful too.

Healing can be a slow process. It's not unusual to have weird symptoms like yours as you go along.

squirmingitch Veteran

I'm not sure if it works this way for humans or not but it's worth considering & someone can step in here & tell me I'm way off base or not. You might try frozen veggies & fruits in addition to the probiotics. Here's why: If you're going to give dogs fruits & veggies then they should be frozen (& then thawed) first. Their systems can't break down the cellulose in the fresh fruits & veggies so freezing them prior helps to break down the cellulose & then the animal can get the nourishment from the food. Ever given a dog raw carrot slices? Comes out the other end chewed up but not digested. ohmy.gif

1desperateladysaved Proficient

I no longer eat any grain and that change from a traditional gluten diet to no grain made me experience a second round of withdrawl. However, after a week I think I am noticeably better. I hope the same for you.

Hi-

I was diagnosed with Celiac a little over a month ago. I am on a completely gluten free diet but find that if I eat any starch/carbohydrate at all, I have problems (terrible gas, diarrhea, cramping). This includes any vegetables or fruits. I really only feel okay eating eggs, tuna, and plain chicken. Is this normal after diagnosis and beginning a gluten free diet? Is there anything I can do?

Thanks for any info or advice!

Caligirl04

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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