Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cycling Symptoms


Nen

Recommended Posts

Nen Explorer

I don't know if this sounds possible for something like celiac, I've been keeping a journal for about the past year.

I get these phases where I feel bad (Sinus problems, near constant one sided dull head pain/pressure, achy and stiff, fatigued, odd nerve problems on same side of body as dull head pain/pressure, nausea).

These phases last about a couple weeks, then for a week or two I feel GREAT, then its back to feeling bad again for a couple weeks, then I feel GREAT like a new person for a week or two. I've never heard of anything that can cycle through like this. Can celiac symptoms come and go with that much frequency?

I thought maybe allergies, but even allergy meds don't really help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sora Community Regular

I don't know if this sounds possible for something like celiac, I've been keeping a journal for about the past year.

I get these phases where I feel bad (Sinus problems, near constant one sided dull head pain/pressure, achy and stiff, fatigued, odd nerve problems on same side of body as dull head pain/pressure, nausea).

These phases last about a couple weeks, then for a week or two I feel GREAT, then its back to feeling bad again for a couple weeks, then I feel GREAT like a new person for a week or two. I've never heard of anything that can cycle through like this. Can celiac symptoms come and go with that much frequency?

I thought maybe allergies, but even allergy meds don't really help.

I am allergic to wheat and chemicals and have these symptoms. They come and go and range from one extreme to another pain wise. It depends on the amount of exposure. It took me nearly four years to figure out that it was allergies for me.

It's possible you have allergies, maybe try another type of allergy pill?

It also sounds like it might be migraines?

Others may have more ideas and hopefully you can figure it out soon.

birdie22 Enthusiast

My symptoms are different than yours, but yes, I experienced symptom cycling. I too had been tracking and my headaches, bloating, and heartburn would happen almost always 1 week prior to ovulation and again 1 week prior to my period and each time the symptoms would last 2-3 days. I thought it was purely hormonal. This went on for quite a while and then the symptoms started happening with more and more frequency and the cycling just about disappeared.

Nen Explorer

Thanks for the replies. I just keep trying different things and hope something sticks.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,491
    • Most Online (within 30 mins)
      7,748

    Lzzzm
    Newest Member
    Lzzzm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      @Celiac50, Other than finding foods that make your tummy happy, are you feeling well?  No other symptoms?  That's great progress! You don't mention vitamin D status.  Vitamin D deficiency in the UK has been estimated to be as high as 60% of the population. Celiac Disease causes depleted oral vitamin D from malabsorption.  Most people do not get enough UV light to activate skin creation of vitamin D. Vitamin D supplementation in the United Kingdom: time for change Vitamin D Is Not as Toxic as Was Once Thought It looks like you are going to have to try changing out food by food, until you find the one.  Start with the supplements.      Wild caught vs. farm raised?  Sometimes it is just a subtIe change that can do it. I know that switching to grass fed milk has been good for me.
    • RMJ
      The incidence of autoimmune diseases in general, including celiac disease, has increased.  There are various theories as to why. The environment we live in, diet we eat, toxins we’re exposed to, stress levels, activity levels and infectious diseases to which we are exposed are all quite different now. A robust immune system that would have been an advantage thousands of years ago may be a bit too robust for modern life.
    • knitty kitty
      @Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K.   Vitamin A toxicity does not cause Celiac disease.  Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation.  Fish contains thiaminases, chemical compounds that destroy thiamine, Vitamin B 1, making the thiamine unusable.  Excessive intake of foods containing thiaminases can precipitate low thiamine.   Low thiamine can also be a result of bacterial or yeast infections.  A high carbohydrate diet encourages Candida and bacterial infections.  High carbohydrate diets promote SIBO and Candida because they feed on the excess carbohydrates and suppress the beneficial bacteria.  Other types of bacteria can take advantage of this and set up housekeeping outside the gastrointestinal tract, including bacterial vaginosis. Thiamine Vitamin B 1 can alter the microbiome.  Thiamine has been shown to suppress Candida, SIBO, and other bacterial and viral infections, and favor the growth of beneficial bacteria.  My SIBO cleared once I supplemented with Benfotiamine, a form of thiamine that has been shown to promote intestinal healing, and a B Complex.  Thiamine works in concert with the other B vitamins and magnesium. Thiamine helps to lower histamine levels by calming mast cells that release histamine at the slightest provocation.   Following the Autoimmune Protocol diet also helped immensely in getting my digestive system calmed and able to tolerate more foods. Have you discussed with your doctor and dietician supplementing essential B vitamins while healing?  What is your Vitamin D level?  Vitamin D helps calm the immune system.  
    • cristiana
      Update - my Active B12 is 36.  Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal.   I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great, because from what I understand, in the UK our normal levels are set low and 'lower normal' levels would be considered a deficiency in such countries as Germany and Japan. Regarding B12 levels, it doesn't look as if my levels are low enough to be offered B12 injections.  That being the case, I remember reading that sublingual tablets can still be very effective but one particular type is better than another - I can't remember which type.  Can anyone help?
    • cristiana
      Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test?  I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests.  My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals seem to be taking any interest in it although this is  my fault as last time I saw my Consultant I failed to mention my symptoms - I had so many other questions to ask him.  Anyway - here are the details for an A test: https://www.medichecks.com/products/vitamin-a-retinol-blood-test?gad_source=1&gad_campaignid=11996732820&gbraid=0AAAAAD9XHFyeAOrxlryOpWS_jXwZ8PCc1&gclid=EAIaIQobChMIyrjj2Pb2jwMVnJJQBh22CTkVEAAYASAAEgIGDPD_BwE
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.