Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grocery Shopping Could Cause A Reaction

farmer jennings

Recommended Posts

farmer jennings Newbie
farmer jennings
Posted

I want to alert others to a possible problem.

Within the last 8 months I have had to tell my husband he is going 100% gluten free. He must use gluten free breads, pastas, etc and can no longer bring anything into the home that is not gluten free. If he so much as toasts, microwaves or reheats on the stove a non gluten-free item I end up -- rashing out, itching all over, and with symptoms of Asthma. Since my BelAir grocery store remodeled,they decided to place their bread aisle in the same aisle - directly across from -a wall of refrigeration units. I started out not being able to go down that aisle and then I could not go down the adjoining aisles and now I have to stop shopping there all together. I have in the past talked to the manager with no results. So I E-mailed corporate.I am awaiting their response.

A month ago I went to my mother in laws flower class and ended up itching and not being able to breathe and found out that they had a kitchen 20 feet away that was preparing for a banquet. This new -affliction- now makes it hard for me to go to other family members homes. I have had to " hibernate" and stay away from family during fall thru winter due to Severe Chronic Idiopathic Neutropenia, which is a condition where my body cannot keep healthy White Blood cell count, so I already had to forgo seeing family during these months. Now I must add the rest of the year. Needless to say I have had many tears

because of this. So please be careful! Anne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

This makes life difficult. I know of people who wear masks when they go out. Maybe that would help you too?

jeanzdyn Apprentice
jeanzdyn
Posted

I do not mean to be 'preach-y' but this is an excellent lesson for all of us that celiac disease is an auto-immune disease.

I am sorry that things are so difficult for you farmer jennings, I cannot imagine how tough it is for you. It is terrible to have to be isolated. Do you know anyone in your area with celiac disease --that you might be able to spend time with -just so you do not feel so isolated. You have my sympathy.

farmer jennings Newbie
farmer jennings
Posted
  • Author

THank you both for your love. Yes it is hard and I thank god for my loving husband. I have thought about seeking out a support group but I have to be extremely careful with my white count. Since I got rid of all bread I heve felt like a weight has been lifted off by system and I am thinking thjat I might have an allergy to yeast. It seem like one step forward two back on a continual basis. I know God is there walking the walk with me which gives me the gumption to go on and keep kicking butt!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,874
    • Most Online (within 30 mins)
      7,748
    Kelly Bates
    Newest Member
    Kelly Bates
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory Celiac disease - what to do

      By knitty kitty · Posted

      Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac.  What did your doctor recommend? What about your Vitamin D?  It helps regulate the immune system.  
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where the doctor was like yep, I can see the damage. My tissues all look great apparently. So if they come back negative, I'm not sure where to go from here. Could it still be a non-celiac gluten sensitivity even with my blood work? I thought NCGS didn't show up on blood tests. Is it possible that the biopsy still comes back positive even if everything looked healthy on endoscope? I had it done at a big hospital in the state, so I would think they'd have the kind of equipment where they'd be able to see it well. I even have pictures in my report and they don't seem to have the damage that others have seen.
    • trents
      Virus, celiac disease or both?

      By trents · Posted

      That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we frequently have posters on this forum who were silent celiacs for years and were diagnosed incidentally with celiac disease when their docs were checking for other things. They developed other medical problems such as anemia or vitamin and mineral deficiencies, neurological deficits, Hashimodo's thyroid, osteoporois, etc. - non GI symptoms - but their docs recognized those problems as often connected to celiac disease and had them checked for celiac disease, both blood antibody testing and biopsy, and found damage. A couple of years ago the Mayo Clinic did a large study involving over 300 people. They started with those officially diagnosed with celiac disease and also tested their first degree relatives. They found that almost 50% of  the first degree relatives tested positive for celiac disease and many or most were totally caught by surprise because they were largely asymptomatic. Their diagnosis was confirmed by biopsy. I really don't have anything more to say. You have some decisions to make.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two.   If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency.  So get the tests before supplementing, or allow eight to twelve weeks for the supplements to wear off.    The thing with blood tests is that they measure what is in the blood, not what is stored inside organs and tissues where vitamins are actually utilized, and may miss subclinical deficiencies.  In times of shortages, the brain can order cells to release their stored vitamins into the blood stream in order to keep important organs like the brain and heart functioning.   Overall, getting blood tests for deficiencies is a good idea if it's available to you.  Ask for an Erythrocyte Transketolace test for Thiamine deficiency.  If you're deficient in any of the B vitamins, take a B Complex with all the B's in it.  The eight B vitamins work with one another like an orchestra.  Supplementing just one can throw the others off.  
×
×
  • Create New...