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What Do You Think?


Queserasera

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Queserasera Newbie

I have had GI issues for about 15 years now. For a long time I would think it was a certain food(s) then cut it out of my diet. For example, ranch dressing on salad, Alfredo sauce on pasta, dips when I was eating chips or crackers.

The weird thing is that after I had both of my children, my symptoms went away for about 2 years or so. I got to a point where I wasn't eating anything except bread products but was still getting sick and couldn't figure out why.

I finally sucked it up and went to my regular dr who said based on my symptoms (basically just D not a ton of stomach pain or other issues) that it was IBS. Then she asked me if I had noticed any foods lately that we're bothering me. Once I said that I knew bagels gave me an issues. Once I said that she said that it could be celiac and sent me to have an endoscopy done.

While waiting to visit the GI dr and then for the endoscopy I tried going off gluten for a few days before reading that I shouldn't do that until I was diagnosed. So I went back to it but only a little bit every day. A couple days ago I had a lot of gluten and man did I pay for it within a few hrs.

I had my endoscopy today and have to wait for the biopsy results. But I thought they could tell from looking that it was celiac? What do you guts think? Does this sound like celiac or IBS?


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kareng Grand Master

Is sounds like it could be Celiac. What did your Celiac blood tests show? They usually do those before an endo. The damage is considered microscopic. They take samples ( biopsies) that are sent to a Patholgist to look at.

Queserasera Newbie

I'm not sure about the blood test results. My regular dr office you have to go back for results - wont do over phone - and I wasn't that concerned with them because of how many false negatives there are.

sa1937 Community Regular

I'm not sure about the blood test results. My regular dr office you have to go back for results - wont do over phone - and I wasn't that concerned with them because of how many false negatives there are.

Can you call the doctor's office, who ordered the blood tests, and go pick up a copy?

If you've already had the celiac panel and the biopsy, you can go gluten-free right now without waiting for the pathology report as going gluten-free won't interfere with any other testing your doctors may want to do. When you have your follow-up appointment with your GI doctor, make sure you pick up a copy of the pathology report, too.

Edit: IBS is pretty much a non-diagnosis. It's a symptom of something and for those of us with digestive issues, it pretty well spells out celiac to me (IMHO)

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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